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满足生命垂危患者家属的需求:在持续进行的姑息治疗期间的支持小组计划。

Meeting needs of family members of persons with life-threatening illness: a support group program during ongoing palliative care.

机构信息

Department of Nursing, Gjøvik University College, Norway.

出版信息

Palliat Support Care. 2011 Sep;9(3):263-71. doi: 10.1017/S1478951511000216.

Abstract

OBJECTIVE

The aim of the study was to describe family members' experiences of content, structure, and approach of a potential intervention including a support group program for family members of persons with life-threatening illness.

METHOD

The study was a pilot project in a developmental phase in which a potential intervention, a support group program, was investigated. The design of the study was qualitative descriptive. Twenty-nine family members were interviewed by telephone after taking part in the program. The interviews were analyzed using qualitative content analysis.

RESULTS

The results indicate that the support group program could work as an acceptable and useful intervention for family members. The program was experienced to cover topics of immediate interest reflecting life close to severely ill persons. The structure of the program was found to be inviting, offering an opportunity to establish relationships with other participants and the caring team in a warm atmosphere.

SIGNIFICANCE OF RESULTS

The study indicates the importance of health professionals inviting and interacting with family members during ongoing palliative care. The results could inspire nursing staff to initiate, develop, and deliver similar interventions.

摘要

目的

本研究旨在描述潜在干预措施(包括支持团体计划)中家庭成员对内容、结构和方法的体验,该潜在干预措施旨在为生命垂危患者的家庭成员提供支持。

方法

该研究是一个发展阶段的试点项目,对一项潜在的干预措施,即支持团体计划进行了调查。研究设计为定性描述。29 名参加该计划的家庭成员通过电话接受了采访。使用定性内容分析法对访谈进行了分析。

结果

研究结果表明,支持团体计划可以作为一种可接受且有用的家庭干预措施。该计划涵盖了当前家庭所关心的问题,反映了与重病患者生活相关的内容。研究还发现,该计划的结构很吸引人,为参与者与其他参与者以及关怀团队在温馨的氛围中建立关系提供了机会。

结果的意义

本研究表明医护人员在进行姑息治疗时邀请并与患者家属互动的重要性。研究结果可以激发护理人员开展、发展和提供类似的干预措施。

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