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为一名唐氏综合征患者的退行性髋关节疾病确保治疗存在困难:差距依然存在。

Difficulty in securing treatment for degenerative hip disease in a patient with Down syndrome: the gap remains open.

作者信息

Gill Chandler E, Taylor Henry M, Lin K T, Padaliya Bimal B, Newman William J, Abramovitch Anna I, Richardson CaraLee R, Charles P David

机构信息

Vanderbilt University Medical Center, 2100 Pierce Ave., Nashville, TN 37212-3375, USA.

出版信息

J Natl Med Assoc. 2006 Jan;98(1):93-6.

Abstract

In 2002, the office of the U.S. surgeon general published a report detailing the discrepancies between the quality of healthcare afforded to persons with and without mental retardation. This article examines the case of a female resident of a developmental center with profound mental retardation due to Down syndrome and degenerative hip disease. Although she was in urgent need of a total hip replacement, the operation was denied or delayed by several different surgeons. Using a survey of physician attitudes, we examine several possible motivations behind the surgeons' reluctance to perform the procedure and conclude that these reasons were not appropriate in this case. Finally, we reiterate the surgeon general's call to eradicate preconceptions held in the medical community about the population of persons with mental retardation that result in similar failures to provide adequate care.

摘要

2002年,美国卫生局局长办公室发表了一份报告,详细阐述了智障人士与非智障人士所获医疗保健质量之间的差异。本文探讨了一名发育中心女性居民的案例,她因唐氏综合征和退行性髋关节疾病而患有严重智力障碍。尽管她急需进行全髋关节置换手术,但几位不同的外科医生都拒绝或推迟了该手术。通过对医生态度的调查,我们研究了外科医生不愿实施该手术背后的几种可能动机,并得出结论,在这种情况下这些理由并不恰当。最后,我们重申卫生局局长的呼吁,即消除医学界对智障人群的偏见,这种偏见导致了类似未能提供充分护理的情况。

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