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[以家庭为导向的后续护理作为癌症患儿及其家庭的康复和二级预防手段]

[Family-oriented after-care as a means of rehabilitation and secondary prevention for children with cancer and their families].

作者信息

Häberle H, Weiss H, Fellhauer S, Schwarz R

机构信息

Psychosoziale Nachsorgeeinrichtung und Fortbildungsseminar an der Chirurgischen Universitätsklinik, Heidelberg.

出版信息

Klin Padiatr. 1991 Jul-Aug;203(4):206-10. doi: 10.1055/s-2007-1025431.

DOI:10.1055/s-2007-1025431
PMID:1658428
Abstract

In a prospective longitudinal study 44 families, where one child had a cancer disease, were questioned about the effect of family oriented change in the physical condition of the patients and their parents, improvement of the psychic state of health of the patients and their brothers and sisters, improvement of the measured depressive general attitude of the fathers and mothers and a positive change in the relationship between the spouses. Apart from the medical aftercare the spare-time and pedagogical offers of the clinics where the most appreciated and the most frequented by the parents and the children.

摘要

在一项前瞻性纵向研究中,对44个家庭进行了询问,这些家庭中有一个孩子患有癌症,内容涉及以家庭为导向的变化对患者及其父母身体状况的影响、患者及其兄弟姐妹心理健康状况的改善、父母测得的抑郁总体态度的改善以及配偶之间关系的积极变化。除了医疗后续护理外,诊所提供的业余活动和教育服务最受父母和孩子的赞赏且参与度最高。

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[Family-oriented after-care as a means of rehabilitation and secondary prevention for children with cancer and their families].[以家庭为导向的后续护理作为癌症患儿及其家庭的康复和二级预防手段]
Klin Padiatr. 1991 Jul-Aug;203(4):206-10. doi: 10.1055/s-2007-1025431.
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[Family-oriented management of children and adolescents with cancer].[癌症儿童和青少年的家庭导向管理]
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Caring for a child with cancer: a longitudinal perspective.关爱患癌儿童:纵向视角
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Parenting experiences during cancer.癌症期间的育儿经历。
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Klin Padiatr. 2009 Jul-Aug;221(4):241-6. doi: 10.1055/s-0029-1216364. Epub 2009 Jul 23.
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Home care for medically fragile children: impact on family health and well-being.为医疗脆弱儿童提供家庭护理:对家庭健康和幸福的影响。
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[Differences in current state and at the beginning of cancer therapy and possible sequelae: a pilot study in pediatric oncology].[癌症治疗开始时与当前状态的差异及可能的后遗症:儿科肿瘤学的一项初步研究]
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Parents' perspective on symptoms, quality of life, characteristics of death and end-of-life decisions for children dying from cancer.父母对患癌濒死儿童的症状、生活质量、死亡特征及临终决策的看法。
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[Cancer after care--the role of social work in the rehabilitation of cancer patients].[癌症后续护理——社会工作在癌症患者康复中的作用]
Rehabilitation (Stuttg). 1988 Feb;27(1):1-4.

引用本文的文献

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Psychosocial interventions for rehabilitation and reintegration into daily life of pediatric cancer survivors and their families: A systematic review.心理社会干预对儿科癌症幸存者及其家庭康复和重返日常生活的作用:系统评价。
PLoS One. 2018 Apr 19;13(4):e0196151. doi: 10.1371/journal.pone.0196151. eCollection 2018.