Suzuki Lalita K, Beale Ivan L
HopeLab, Palo Alto, CA 94301-1638, USA.
J Pediatr Oncol Nurs. 2006 May-Jun;23(3):152-61. doi: 10.1177/1043454206287301.
The content of personal Web home pages created by adolescents with cancer is a new source of information about this population of potential benefit to oncology nurses and psychologists. Individual Internet elements found on 21 home pages created by youths with cancer (14-22 years old) were rated for cancer-related self-presentation, information dissemination, and interpersonal connection. Examples of adolescents' online narratives were also recorded. Adolescents with cancer used various Internet elements on their home pages for cancer-related self-presentation (eg, welcome messages, essays, personal history and diary pages, news articles, and poetry), information dissemination (e.g., through personal interest pages, multimedia presentations, lists, charts, and hyperlinks), and interpersonal connection (eg, guestbook entries). Results suggest that various elements found on personal home pages are being used by a limited number of young patients with cancer for self-expression, information access, and contact with peers.
患癌青少年创建的个人网页内容是有关这一人群的新信息来源,可能会让肿瘤学护士和心理学家受益。对21名患癌青少年(14至22岁)创建的网页上的各项互联网元素进行了评分,评估其与癌症相关的自我展示、信息传播和人际联系情况。还记录了青少年在线叙述的示例。患癌青少年在其网页上使用各种互联网元素进行与癌症相关的自我展示(如欢迎信息、文章、个人经历和日记页面、新闻报道及诗歌)、信息传播(如通过个人兴趣页面、多媒体展示、列表、图表和超链接)以及人际联系(如留言簿留言)。结果表明,个人网页上的各种元素正被少数患癌青少年用于自我表达、获取信息以及与同龄人联系。