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与那些“只是知道”的人交谈:对参加青少年团体的癌症青少年的看法。

Talking with others who "just know": perceptions of adolescents with cancer who participate in a teen group.

作者信息

Cassano Jane, Nagel Kim, O'Mara Linda

机构信息

Pediatric Oncology, McMaster Children's Hospital, Hamilton, Ontario, Canada.

出版信息

J Pediatr Oncol Nurs. 2008 Jul-Aug;25(4):193-9. doi: 10.1177/1043454208319972. Epub 2008 Jun 6.

Abstract

Adolescents with cancer have social support needs that are challenging to meet. A qualitative descriptive study was done using in-person interviews with 11 participants between the ages of 14 and 20. The purpose of the study was to explore and describe adolescent's perceptions of a teen support group. Two main themes emerged: Satisfying Elements and Challenges in the teen group. The subthemes under Satisfying Elements include participants being able to talk to others who "just know," sharing experiences while having fun as a normal teenager, and giving or receiving inspiration. Subthemes under Challenges as identified by participants include ensuring that activities during teen events meet the needs of all participants and dealing with the death of a group member. Study findings suggest that adolescent's feel supported when they are among others in similar circumstances while engaging in normal activity. Offering this type of group for adolescents with cancer provides them with the ongoing opportunities for connection with their peers that is often needed throughout the treatment journey.

摘要

患癌青少年有一些难以满足的社会支持需求。一项定性描述性研究通过对11名年龄在14至20岁之间的参与者进行面对面访谈来开展。该研究的目的是探索和描述青少年对青少年支持小组的看法。出现了两个主要主题:青少年小组中的满足因素和挑战。满足因素下的子主题包括参与者能够与“感同身受”的其他人交谈、像普通青少年一样在享受乐趣的同时分享经历,以及给予或获得启发。参与者指出的挑战下的子主题包括确保青少年活动期间的活动满足所有参与者的需求以及应对小组成员的死亡。研究结果表明,当患癌青少年处于类似情况的其他人之中并参与正常活动时,他们会感到得到了支持。为患癌青少年提供这种类型的小组为他们提供了在整个治疗过程中经常需要的与同龄人建立联系的持续机会。

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