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帮助晚期癌症患者带着对饮食的担忧生活:这是姑息治疗专业人员面临的一项挑战。

Helping patients with advanced cancer live with concerns about eating: a challenge for palliative care professionals.

作者信息

Hopkinson Jane, Corner Jessica

机构信息

School of Nursing and Midwifery, University of Southampton, Southampton, Hampshire, United Kingdom.

出版信息

J Pain Symptom Manage. 2006 Apr;31(4):293-305. doi: 10.1016/j.jpainsymman.2005.09.005.

Abstract

This paper reports findings of an exploratory study of the eating habits of people with advanced cancer living in the south of England in 2003. The purpose of the study was to develop an understanding of why eating can be experienced as troubling and examine the potential for helping people live with the changes in eating habits that often accompany advanced cancer. Semistructured interviews were conducted with 30 patients, 23 lay caregivers, and 14 specialist nurses. The data were analyzed thematically. It was found that patients experienced eating-related concerns when the reality of eating differed from the expectations of eating. Patient response to concern ranged from acceptance to self-action. A subgroup of participants believed that they could have been helped by support for taking self-action. Eating-related concerns present nurses and other health care professionals with the challenge of supporting differing patient preferences for living with the symptom, which can include the expectation of support for self-action.

摘要

本文报告了2003年对居住在英格兰南部的晚期癌症患者饮食习惯进行的一项探索性研究的结果。该研究的目的是深入了解为什么饮食会成为困扰,并探讨帮助人们应对晚期癌症常伴随的饮食习惯变化的可能性。对30名患者、23名非专业护理人员和14名专科护士进行了半结构化访谈。对数据进行了主题分析。研究发现,当饮食的现实情况与饮食期望不同时,患者会出现与饮食相关的担忧。患者对担忧的反应从接受至自我行动。一部分参与者认为,若能得到支持以采取自我行动,他们本可从中受益。与饮食相关的担忧给护士和其他医护专业人员带来了挑战,即要支持患者对应对该症状的不同偏好,这可能包括对自我行动支持的期望。

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