Zanchetta Margareth Santos, Perreault Michel, Kaszap Margot, Viens Chantal
School of Nursing, Faculty of Community Services, Ryerson University, 350 Victoria Street office 468E Toronto, Ont., Canada.
Int J Nurs Stud. 2007 Aug;44(6):961-72. doi: 10.1016/j.ijnurstu.2006.03.018. Epub 2006 May 30.
The increasing need of older individuals to safely self-manage their chronic illnesses requires that they clearly understand health-related information. Thus, this study examined health literacy as lived by men with prostate cancer (PC), rather than as assessed by professionals.
This study aimed to describe, analyse, and understand informational strategies of men with PC. The main objective was to describe these strategies according to self-assessed levels of functional health literacy and thus create an inventory of strategy characteristics.
The modélisation qualitative research design framed this inquiry.
Montreal and Laval, province of Québec, Canada.
The purposive sample comprised 15 French-Canadian men aged 61-83, most of whom were enroled in a PC support group. Recruitment and selection was assisted by the support group's chairman and a volunteer recruiter. Selection criteria were medical diagnosis of localised PC, childhood spent in Québec, ability to self-assess functional health literacy, effective oral communication in French, no use of psychotropic drugs, and normal time and space orientation.
Data collection involved semi-structured interviews and drawing of genograms and ecomaps. The qualitative-data-analysis software Atlas. ti (Version 4.1 for Windows) was used to code the interview data. Findings were also subjected to content analysis. Six volunteers examined and confirmed the authors' interpretation of the findings.
Functional health literacy was cultivated throughout participants' lives and nourished by their social and cultural resources. A history of reading at home, interest in learning, supportive family and elementary school environments developed open-minded, critical-information-seeking older men. The findings did not support any association among formal education, level of health literacy, and ways of dealing with PC-related information. The construction of information networks provided participants with knowledge and with emotional and spiritual support to cope with PC. Men with different levels of health literacy had both unique and similar information strategies.
Participants' decisions to adopt specific information strategies were influenced by awareness of impacts of PC on men's lives, construction and maintenance of information networks, as well as participants' critique of health information. Through their information strategies, participants regained decision-making power over their bodies and destinies, and then redefined their social roles.
老年个体对安全自我管理慢性病的需求日益增加，这要求他们清楚地理解与健康相关的信息。因此，本研究考察了前列腺癌（PC）男性患者实际体验到的健康素养，而非专业人员所评估的健康素养。
本研究旨在描述、分析和理解PC男性患者的信息策略。主要目的是根据自我评估的功能性健康素养水平描述这些策略，从而创建一份策略特征清单。
本调查采用定性研究设计模型。
加拿大魁北克省蒙特利尔市和拉瓦尔市。
目的抽样包括15名年龄在61 - 83岁的法裔加拿大男性，他们大多数都加入了一个前列腺癌支持小组。招募和选择由支持小组主席和一名志愿者招募者协助进行。选择标准包括局部前列腺癌的医学诊断、在魁北克度过的童年、自我评估功能性健康素养的能力、用法语进行有效口头交流的能力、未使用精神药物以及正常的时间和空间定向能力。
数据收集包括半结构化访谈以及绘制系谱图和生态图。使用定性数据分析软件Atlas.ti（适用于Windows的4.1版本）对访谈数据进行编码。研究结果还进行了内容分析。六名志愿者检查并确认了作者对研究结果的解读。
功能性健康素养在参与者的一生中得到培养，并受到他们的社会和文化资源的滋养。在家中阅读的历史、对学习的兴趣、支持性的家庭和小学环境培养出了思想开放、善于批判性获取信息的老年男性。研究结果不支持正规教育、健康素养水平和处理前列腺癌相关信息方式之间存在任何关联。信息网络的构建为参与者提供了应对前列腺癌的知识以及情感和精神支持。不同健康素养水平的男性有独特且相似的信息策略。
参与者采用特定信息策略的决定受到前列腺癌对男性生活影响的认知、信息网络的构建和维护以及参与者对健康信息的批判的影响。通过他们的信息策略，参与者重新获得了对自己身体和命运的决策权，进而重新定义了他们的社会角色。
