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考察跨源获取癌症相关信息及其对医患关系的影响。

Examining cross-source engagement with cancer-related information and its impact on doctor-patient relations.

机构信息

Annenberg School For Communication, University of Pennsylvania, Philadelphia, PA 19104, USA.

出版信息

Health Commun. 2009 Dec;24(8):723-34. doi: 10.1080/10410230903264030.

Abstract

Patients may bring unreliable information to the physician, complicating the physician-patient relationship, or outside information seeking may complement physician information provision, reinforcing patients' responsibility for their health. The current descriptive evidence base is weak and focuses primarily on the Internet's effects on physician-patient relations. This study describes how cancer patients bring information to their physicians from a range of sources and are referred by physicians to these sources; the study also examines explanations for these behaviors. Patients with breast, prostate, and colon cancer diagnosed in 2005 (N = 1,594) were randomly drawn from the Pennsylvania Cancer Registry; participants returned mail surveys in Fall 2006 (response rate = 64%). There is evidence that both bringing information to physicians and being referred to other sources reflects patients' engagement with health information, preference for control in medical decision making, and seeking and scanning for cancer-related information. There is also evidence that patients who bring information from a source are referred back to that source.

摘要

患者可能会向医生提供不可靠的信息,从而使医患关系复杂化,或者患者可能会从外部获取信息来补充医生提供的信息,从而增强患者对自身健康的责任感。目前的描述性证据基础薄弱,主要集中在互联网对医患关系的影响上。本研究描述了癌症患者如何从各种来源向医生提供信息,并被医生转介到这些来源;本研究还探讨了这些行为的解释。2005 年诊断出患有乳腺癌、前列腺癌和结肠癌的患者(N=1594)从宾夕法尼亚癌症登记处随机抽取;参与者在 2006 年秋季通过邮件返回了调查问卷(回复率=64%)。有证据表明,向医生提供信息和被转介到其他来源都反映了患者对健康信息的参与、在医疗决策中寻求控制的偏好,以及对癌症相关信息的寻求和扫描。也有证据表明,从某个来源带来信息的患者会被转回该来源。

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Incorporating patient and family preferences into evidence-based medicine.将患者及家属的偏好纳入循证医学。
BMC Med Inform Decis Mak. 2013;13 Suppl 3(Suppl 3):S6. doi: 10.1186/1472-6947-13-S3-S6. Epub 2013 Dec 6.

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