Ziegert Kristina, Fridlund Bengt, Lidell Evy
School of Social and Health Sciences, Halmstad University, Halmstad, Sweden.
Scand J Caring Sci. 2006 Jun;20(2):223-8. doi: 10.1111/j.1471-6712.2006.00400.x.
Despite the fact that haemodialysis requires that spouses support and assist their partner during the treatment period, little attention has been focused on their health. The aim of this study was to explore experiences of health in everyday life among spouses of haemodialysis patients. The study had an explorative and descriptive design based on content analysis. Thirteen participants were interviewed in their home without the presence of the patient. The results show that arduousness was experienced when that spouses' everyday life was taken up by caring for the patient at the expense of his/her own health. Spouses exhibited stamina and neglected their own health when focusing on the patient and minimising their own condition. Independence in everyday life revealed that spouses who cared about themselves and looked after their own health experienced relaxation and happiness, which protected their health. Clinical interventions should include an assessment of the spouses' health and everyday life in order to plan the care to ensure that it is directed towards increasing their independence. Instruments need to be developed that assess when and how spouses experience the greatest sense of well-being, if they have scope for relaxation and recovery, and what type of support they require in their everyday life.
尽管血液透析要求配偶在治疗期间支持和协助其伴侣，但他们的健康却很少受到关注。本研究的目的是探讨血液透析患者配偶在日常生活中的健康体验。该研究基于内容分析，采用探索性和描述性设计。在患者不在场的情况下，对13名参与者进行了家访。结果表明，当配偶的日常生活被照顾患者所占据，而牺牲了自己的健康时，会感到艰难。配偶在关注患者并尽量减少自身状况时，表现出耐力并忽视了自己的健康。日常生活中的独立性表明，关心自己并照顾自身健康的配偶会体验到放松和幸福，这对他们的健康有保护作用。临床干预应包括对配偶健康和日常生活的评估，以便规划护理，确保护理旨在增强他们的独立性。需要开发一些工具，以评估配偶何时以及如何体验到最大的幸福感、他们是否有放松和恢复的空间，以及他们在日常生活中需要何种类型的支持。
