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不公正世界问题:迈向医疗服务提供者和研究者的倡导伦理

The unjust world problem: Towards an ethics of advocacy for healthcare providers and researchers.

作者信息

Mishler Elliot G

机构信息

Department of Psychiatry, Harvard Medical School, Cambridge, MA 02139, USA.

出版信息

Commun Med. 2004;1(1):97-104. doi: 10.1515/come.2004.009.

Abstract

This article addresses the problem of the relative lack of connection between two ethical perspectives in the healthcare field: an ethics of humane care and an ethics of social justice. The first underlies the critique by practitioners and researchers of differentials between healthcare providers and patients in the irrespective levels of control over communication and collaboration in clinical encounters. The second informs the critique by public health researchers and policy makers of the structural basis of social inequality, poverty, and violence that are the sources of racial, ethnic and class differentials in levels of health. I have framed these two perspectives in a way that suggests their parallel concerns with inequality. By referring to a disconnect between them as the 'unjust world problem', I wish to mark their respective limitations--the first tending to exclude forces that lie outside the clinical situation and the second tending to ignore differentials in access to care and types of treatment received. I argue for the importance of bringing these two perspectives together in a dialectical relationship, where each informs and strengthens the other. Readers of this journal are familiar with studies of communication, clinical practice, and the humane care ethics and, therefore, I highlight studies undertaken within a social justice perspective that document marked disparities among social groups in rates of illness and preventable deaths and also refer to some models of work that link the two perspectives. These are complex issues and by suggesting that we consider an ethics of advocacy that is attentive to both humane care and social justice, I hope to raise questions for further discussion, such as: When we learn to communicate better and to listen to our patients and research subjects, will we be asking about and listening to their accounts of what it means to live in a world of poverty, social exclusion, and inequality? And if we then learn how their problems are rooted in such a world, are we prepared to become advocates with them not only for more humane health care but for social justice?

摘要

本文探讨了医疗保健领域中两种伦理视角之间相对缺乏联系的问题

人文关怀伦理和社会正义伦理。前者是从业者和研究者对临床诊疗中医疗服务提供者与患者在沟通与协作控制水平上差异进行批判的基础。后者则为公共卫生研究者和政策制定者对社会不平等、贫困和暴力的结构基础进行批判提供依据,而这些正是健康水平上种族、民族和阶级差异的根源。我对这两种视角的阐述方式表明了它们对不平等问题的共同关注。通过将它们之间的脱节称为“不公正世界问题”,我想指出它们各自的局限性——前者往往排除临床情境之外的因素,而后者往往忽视获得医疗服务的差异以及所接受治疗类型的差异。我主张将这两种视角以辩证关系结合起来的重要性,在这种关系中,它们相互影响并相互强化。本期刊读者熟悉关于沟通、临床实践以及人文关怀伦理的研究,因此,我着重介绍了从社会正义视角开展的研究,这些研究记录了社会群体在疾病发生率和可预防死亡率方面的显著差异,同时还提及了一些将两种视角联系起来的工作模式。这些都是复杂的问题,通过建议我们考虑一种兼顾人文关怀和社会正义的倡导伦理,我希望能引发进一步讨论的问题,比如:当我们学会更好地沟通并倾听患者和研究对象时,我们是否会询问并倾听他们对生活在一个贫困、社会排斥和不平等的世界意味着什么的描述?如果我们随后了解到他们的问题如何植根于这样一个世界,我们是否准备好与他们一起不仅倡导更人性化的医疗保健,而且倡导社会正义?

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