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重新思考医学伦理:自下而上的视角。

Rethinking medical ethics: a view from below.

作者信息

Farmer Paul, Campos Nicole Gastineau

机构信息

Program in Infectious Disease and Social Change, 641 Huntington Avenue Boston, MA 02115 USA.

出版信息

Dev World Bioeth. 2004 May;4(1):17-41. doi: 10.1111/j.1471-8731.2004.00065.x.

Abstract

In this paper, we argue that lack of access to the fruits of modern medicine and the science that informs it is an important and neglected topic within bioethics and medical ethics. This is especially clear to those working in what are now termed 'resource-poor settings'- to those working, in plain language, among populations living in dire poverty. We draw on our experience with infectious diseases in some of the poorest communities in the world to interrogate the central imperatives of bioethics and medical ethics. AIDS, tuberculosis, and malaria are the three leading infectious killers of adults in the world today. Because each disease is treatable with already available therapies, the lack of access to medical care is widely perceived in heavily disease-burdened areas as constituting an ethical and moral dilemma. In settings in which research on these diseases are conducted but there is little in the way of therapy, there is much talk of first world diagnostics and third world therapeutics. Here we call for the 'resocialising' of ethics. To resocialise medical ethics will involve using the socialising disciplines to contextualise fully ethical dilemmas in settings of poverty and, a related gambit, the systematic participation of the destitute sick. Clinical research across steep gradients also needs to be linked with the interventions that are demanded by the poor and otherwise marginalised. We conclude that medical ethics must grapple more persistently with the growing problem posed by the yawning 'outcome gap' between rich and poor.

摘要

在本文中,我们认为无法获取现代医学成果及其背后的科学知识,这在生物伦理学和医学伦理学领域是一个重要却被忽视的话题。对于那些在如今被称为“资源匮乏环境”中工作的人——直白地说,就是那些在生活极端贫困人群中工作的人而言,这一点尤为明显。我们借鉴在世界上一些最贫困社区应对传染病的经验,来审视生物伦理学和医学伦理学的核心要务。艾滋病、结核病和疟疾是当今世界成年人的三大主要传染病杀手。由于每种疾病都可用现有疗法进行治疗,在疾病负担沉重的地区,无法获得医疗护理被广泛视为一个伦理和道德困境。在对这些疾病开展研究但治疗手段匮乏的环境中,人们常谈论“第一世界的诊断方法和第三世界的治疗手段”。在此,我们呼吁对伦理学进行“重新社会化”。使医学伦理学重新社会化将涉及利用那些具有社会化功能的学科,以便在贫困背景下充分地将伦理困境情境化,以及让贫困患者系统地参与进来,这是一个相关策略。跨越巨大梯度的临床研究还需要与穷人和其他边缘化群体所要求的干预措施相联系。我们得出结论,医学伦理学必须更持续地应对贫富之间日益扩大的“结果差距”所带来的日益严重的问题。

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