长期接受肠外营养治疗的成年患者的生活质量综述。
A review of the quality of life of adult patients treated with long-term parenteral nutrition.
作者信息
Baxter Janet P, Fayers Peter M, McKinlay Alastair W
机构信息
Department of Digestive Disease and Clinical Nutrition, Ninewells Hospital and Medical School, Dundee, UK.
出版信息
Clin Nutr. 2006 Aug;25(4):543-53. doi: 10.1016/j.clnu.2006.05.003. Epub 2006 Jul 3.
BACKGROUND AND AIMS
Some previous studies have assessed quality of life (QoL) in home parenteral nutrition (HPN) using generic instruments or non-validated questionnaires. A systematic search of electronic databases and relevant publications identified 50 publications. This paper reviews the QoL of patients receiving HPN and discusses the factors affecting QoL.
RESULTS
There is little available data about the QoL of HPN patients. Both HPN and the underlying disease may affect QoL, and an evaluation of QoL requires the separation of these two issues.
CONCLUSIONS
There is a need for a standardised, scientifically validated, treatment-specific instrument to measure QoL in this population. The use of a treatment-specific QoL questionnaire should become part of the routine clinical management of HPN patients.
背景与目的
此前一些研究使用通用工具或未经验证的问卷评估了家庭肠外营养（HPN）患者的生活质量（QoL）。通过对电子数据库和相关出版物进行系统检索，共识别出50篇出版物。本文综述了接受HPN治疗患者的生活质量，并讨论了影响生活质量的因素。
结果
关于HPN患者生活质量的可用数据很少。HPN和基础疾病都可能影响生活质量，对生活质量的评估需要将这两个问题区分开来。
结论
需要一种标准化的、经过科学验证的、针对特定治疗的工具来测量该人群的生活质量。使用针对特定治疗的生活质量问卷应成为HPN患者常规临床管理的一部分。
Zotero 插件