Arraras Juan Ignacio, Kuljanic-Vlasic Karin, Bjordal Kristin, Yun Young Ho, Efficace Fabio, Holzner Bernhard, Mills Judith, Greimel Elfriede, Krauss Oliver, Velikova Galina
Oncology Department, Hospital of Navarre, Pamplona, Spain.
Psychooncology. 2007 Mar;16(3):249-54. doi: 10.1002/pon.1047.
Information disclosure is a key factor in the support for cancer patients. The European Organisation for Research and Treatment of Cancer (EORTC) Quality of Life Group has developed a questionnaire to evaluate the level of information received by cancer patients at different stages of their disease and treatment: the EORTC QLQ-INFO26. It can be used in clinical practice and research, including clinical trials. The questionnaire was developed following EORTC Quality of Life Group guidelines. The paper presents the data on 133 patients from eight countries. The resulting EORTC QLQ-INFO26 questionnaire includes four sub-scales on information regarding their cancer, medical tests, treatment and other services and several single items.
信息披露是支持癌症患者的关键因素。欧洲癌症研究与治疗组织（EORTC）生活质量小组制定了一份问卷，以评估癌症患者在疾病和治疗不同阶段所获得的信息水平：EORTC QLQ-INFO26。它可用于临床实践和研究，包括临床试验。该问卷是按照EORTC生活质量小组的指南制定的。本文展示了来自八个国家的133名患者的数据。最终的EORTC QLQ-INFO26问卷包括关于癌症、医学检查、治疗和其他服务的信息的四个子量表以及几个单项。
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