Karpin Isabel, Bennett Belinda
Centre for Health Governance, Law and Ethics, Faculty of Law, University of Sydney, NSW 2000, Australia.
J Law Med. 2006 Aug;14(1):127-34.
This article provides a critical analysis of the current Australian regulatory landscape at the interface between genetics and reproductive decision-making. The authors argue that a comparative analysis with other countries and international law and a contextual examination of the way law regulates concepts such as disease and health, abnormality and normality is necessary before we can develop appropriate policy and legislative responses in this area. Specific genetic testing technologies are considered including prenatal genetic testing, preimplantation genetic diagnosis and inheritable genetic modification. An increasing number of members of the Australian community are using genetic testing technologies when they decide to have a baby. The authors argue that as concepts of disease and health vary among members of the community and the potential to test for traits other than illness increases, a new tension arises between an ethic of individual choice and a role for government in regulating reproductive decision-making.
本文对澳大利亚当前在遗传学与生殖决策交叉领域的监管格局进行了批判性分析。作者认为,在我们能够制定该领域适当的政策和立法应对措施之前,有必要与其他国家及国际法进行比较分析,并对法律如何规范疾病与健康、异常与正常等概念的方式进行背景审查。文中考虑了特定的基因检测技术,包括产前基因检测、植入前基因诊断和可遗传基因修饰。越来越多的澳大利亚民众在决定生育时使用基因检测技术。作者认为,由于社区成员对疾病和健康的概念各不相同,且检测疾病以外特征的可能性增加,个人选择伦理与政府在规范生殖决策中的作用之间出现了新的矛盾。