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高功能自闭症谱系障碍成年人的生活质量:残疾和支持特征的预测价值。

Quality of life in high-functioning adults with autism spectrum disorder: The predictive value of disability and support characteristics.

作者信息

Renty J O, Roeyers Herbert

机构信息

Research Group Developmental Disorders, Department of Experimental Clinical and Health Psychology, Ghent University, Ghent, Belgium.

出版信息

Autism. 2006 Sep;10(5):511-24. doi: 10.1177/1362361306066604.

Abstract

Although the concept of quality of life has increasingly been used in the field of intellectual disabilities over the past three decades, the factors contributing to quality of life of persons with autism spectrum disorder (ASD) have received relatively little attention. In this study, disability and support characteristics associated with variations in the level of quality of life among adults with ASD are identified, using self-report measures. Fifty-eight high-functioning adults with ASD participated in the study. The results of a multiple linear regression analysis reveal that support characteristics are related to quality of life in adults with ASD, whereas disability characteristics are not. The R2 effect size (0.620) is large and significant. The results reinforce the significance of an available supportive social network, the importance of a substantial needs assessment and effective professional support.

摘要

尽管在过去三十年里,生活质量的概念在智力残疾领域得到了越来越广泛的应用,但自闭症谱系障碍(ASD)患者生活质量的影响因素却相对较少受到关注。在本研究中,通过自我报告测量方法,确定了与成年ASD患者生活质量水平差异相关的残疾和支持特征。58名高功能成年ASD患者参与了该研究。多元线性回归分析结果显示,支持特征与成年ASD患者的生活质量相关,而残疾特征则不然。R2效应量(0.620)较大且显著。研究结果强化了可得支持性社会网络的重要性、进行全面需求评估的重要性以及有效专业支持的重要性。

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