Lai Jin-Shei, Cella David, Tomita Tadanori, Bode Rita K, Newmark Monica, Goldman Stewart
Center on Outcomes, Research and Education, Evanston Northwestern Healthcare, 1001 University Place, Suite 100, Evanston, IL 60201, USA.
Childs Nerv Syst. 2007 Jan;23(1):47-57. doi: 10.1007/s00381-006-0176-6. Epub 2006 Sep 8.
With improved treatment, many childhood brain tumor survivors live through adulthood. A psychometrically sound instrument, which can capture their unique experiences through the lifetime, is needed. This paper documents the development of the Pediatric Functional Assessment of Cancer Therapy-Childhood Brain Tumor Survivor (PedsFACT-BrS) for use with survivors for at least 1 year posttreatment.
The PedsFACT-BrS was developed in two phases. In phase I, items were generated via interviewing 20 survivors, 20 caregivers, and 12 clinicians/teachers. In phase II, Rasch analysis and classical test theory were used to evaluate the responses of 46 survivors and 46 caregivers.
The 34-item PedsFACT-BrS covers four domains: physical well-being, emotional well-being and illness experiences, social well-being, and brain tumor-specific concerns. Its scalability is supported by Rasch analysis and its content validity and reliability is documented. It is now ready to be validated to other subpopulations across the disease trajectory.
随着治疗方法的改进，许多儿童脑肿瘤幸存者能够活到成年。需要一种心理测量学上合理的工具，能够记录他们一生的独特经历。本文记录了儿童癌症治疗功能评估-儿童脑肿瘤幸存者版（PedsFACT-BrS）的开发过程，该工具用于治疗后至少1年的幸存者。
PedsFACT-BrS分两个阶段开发。在第一阶段，通过采访20名幸存者、20名照顾者以及12名临床医生/教师生成条目。在第二阶段，运用拉施分析和经典测试理论评估46名幸存者和46名照顾者的回答。
包含34个条目的PedsFACT-BrS涵盖四个领域：身体健康、情绪健康与患病经历、社会健康以及脑肿瘤特定问题。拉施分析支持了其可扩展性，并记录了其内容效度和信度。目前准备在疾病发展轨迹中的其他亚人群中进行验证。
