Brotherton A, Abbott J, Aggett P
Faculty of Health, University of Central Lancashire, Preston, Lancashire, UK.
J Hum Nutr Diet. 2006 Oct;19(5):355-67. doi: 10.1111/j.1365-277X.2006.00712.x.
The provision of home enteral tube feeding in adults has increased in the UK. This study explored how percutaneous endoscopic gastrostomy (PEG) feeding impacts on daily lives of adult patients, from the patients' and carers' perspectives.
A semi-structured interview approach was developed to obtain participants' views of the impact of living with a PEG. A cross-sectional qualitative purposive sampling design was employed. Thirty-four semi-structured interviews were conducted (15 adult patients and 19 carers) and data were analysed descriptively and thematically.
Difficulties arising from PEG feeding included vomiting, diarrhoea, infection of the PEG site and leakage. The key issues that emerged included relief of pressure to consume an oral diet, disturbed sleep, restricted ability to go out, restricted choice of clothing, difficulties finding a place to feed, missing being able to eat and drink, social occasions, negative attitudes of others towards feeding and the burden placed on family members.
The key themes that emerged from participants were diverse and highlight a need for increased social support for both patients and their carers, planned on an individual basis.
在英国，为成年患者提供家庭肠内管饲的情况有所增加。本研究从患者及其护理人员的角度探讨了经皮内镜下胃造口术（PEG）喂养对成年患者日常生活的影响。
采用半结构化访谈方法来获取参与者对PEG生活影响的看法。采用横断面定性目的抽样设计。进行了34次半结构化访谈（15名成年患者和19名护理人员），并对数据进行了描述性和主题性分析。
PEG喂养引起的困难包括呕吐、腹泻、PEG部位感染和渗漏。出现的关键问题包括因食用口服饮食而产生的压力缓解、睡眠障碍、外出能力受限、服装选择受限、难以找到喂养场所、怀念能够吃喝的日子、社交场合、他人对喂养的负面态度以及给家庭成员带来的负担。
参与者提出的关键主题多种多样，突出表明需要根据个人情况为患者及其护理人员增加社会支持。
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