Kylmä Jari, Juvakka Taru
Department of Nursing Science, University of Kuopio, PO Box 1627, 70211 Kuopio, Finland.
Eur J Oncol Nurs. 2007 Jul;11(3):262-71. doi: 10.1016/j.ejon.2006.06.007. Epub 2006 Sep 7.
The purpose of the study was to describe hope in parents of adolescents with cancer. The data were collected by interviewing nine parents of six families (n=18) and analysed by inductive content analysis. Parents' hope implies an orientation towards life and the future, trust, togetherness and wishes. Hope is associated with suffering and despair and it is a life-promoting factor. Factors associated with parental hope relate to the adolescent, the adolescent's cancer and health status, the care received and the care-giving personnel, continuation of life, the parent him- or herself, economics, other people, faith and pets. The findings confirm the statement that hope appears to be central to parents having a child with cancer. The factors endangering and engendering hope are related to several dimensions of family life, suggesting that hope is a broad, multidimensional phenomenon. Engendering hope is important in nursing: hope is a life-sustaining factor, which helps the person to cope in difficult life situations. In caring for an adolescent with cancer and his or her parents, it is of utmost importance to minimize factors endangering parental hope and to foster factors that engender parental hope.
本研究的目的是描述患癌青少年父母的希望。通过对六个家庭的九位父母（n = 18）进行访谈收集数据，并采用归纳性内容分析法进行分析。父母的希望意味着对生活和未来的取向、信任、团聚和愿望。希望与痛苦和绝望相关联，且是促进生活的一个因素。与父母希望相关的因素涉及青少年、青少年的癌症及健康状况、所接受的护理和护理人员、生活的延续、父母自身、经济状况、其他人、信仰和宠物。研究结果证实了这样一种说法，即希望似乎是有患癌子女的父母的核心所在。危及和产生希望的因素与家庭生活的几个维度相关，这表明希望是一个广泛的、多维度的现象。产生希望在护理中很重要：希望是维持生命的因素，有助于人们应对艰难的生活处境。在照顾患癌青少年及其父母时，将危及父母希望的因素降至最低并培养产生父母希望的因素至关重要。
