Milville Laurine, Antoine Pascal, Lelorain Sophie
Univ. Lille, CNRS, UMR 9193 - SCALab - Sciences cognitives et Sciences Affectives, Lille, France.
Univ. Lausanne - Institut de Psychologie, Laboratoire de psychologie de la santé, du vieillissement et du sport, Lausanne, Suisse.
Health Expect. 2025 Aug;28(4):e70388. doi: 10.1111/hex.70388.
We outline the steps in creating and evaluating the content and face validity of the Questionnaire on Parental Hope in Pediatric Oncology (Q-PHPO), which measures the understanding of information provided by healthcare professionals (Part 1) and hope as experienced and perceived by parents (Part 2).
The development of the Q-PHPO was based on a literature review and 14 interviews with parents whose children had been diagnosed with cancer. The content and face validity were verified both quantitatively and qualitatively by assessing the clarity, relevance, and discomfort caused by the questionnaire, with input from expert parents (n = 7) and professionals (n = 10).
In terms of clarity, most items had an item content validity index (I-CVI) ≥ 0.80 and a kappa (K) value ≥ 0.74. Despite more nuanced results being obtained for relevance, most items had an I-CVI ≥ 0.70 and a K value ≥ 0.74. After revision, the first part of the Q-PHPO includes two dimensions: the child's illness (5 items) and the child's psychosocial well-being (4 items). The second part contains 20 items divided into three dimensions: the child's illness (6 items), the child's psychosocial well-being (9 items), and the parent's psychosocial well-being (5 items).
The results provide evidence of the content and face validity of the Q-PHPO. Further testing will confirm the questionnaire's construct and criterion validity and its reliability, making it a potentially valuable tool in pediatric oncology departments.
In this study, we adopted a Patient and Public Involvement and Engagement approach, actively involving patients, healthcare professionals, and researchers as key contributors to the development and evaluation of the Q-PHPO questionnaire. Parents of children in remission from leukemia and healthcare professionals provided valuable insights based on their lived experiences, influencing the content of the questionnaire, and contributed by assessing the relevance and clarity of the questionnaire items. Researchers specializing in questionnaire development and oncology reviewed and refined the instrument, ensuring its validity and suitability.
我们概述了创建和评估儿童肿瘤家长希望问卷（Q-PHPO）内容及表面效度的步骤，该问卷用于衡量家长对医护人员提供信息的理解（第1部分）以及家长所体验和感知到的希望（第2部分）。
Q-PHPO的编制基于文献综述以及对14位子女被诊断患有癌症的家长进行的访谈。通过评估问卷的清晰度、相关性和引起的不适感，从专家家长（n = 7）和专业人员（n = 10）处获取意见，对内容和表面效度进行了定量和定性验证。
在清晰度方面，大多数条目具有条目内容效度指数（I-CVI）≥0.80且kappa（K）值≥0.74。尽管相关性方面获得的结果更细微，但大多数条目I-CVI≥0.70且K值≥0.74。修订后，Q-PHPO的第一部分包括两个维度：儿童疾病（5个条目）和儿童心理社会福祉（4个条目）。第二部分包含20个条目，分为三个维度：儿童疾病（6个条目）、儿童心理社会福祉（9个条目）和家长心理社会福祉（5个条目）。
结果为Q-PHPO的内容和表面效度提供了证据。进一步测试将确认该问卷的结构效度、效标效度及其信度，使其成为儿童肿瘤科室潜在的有价值工具。
在本研究中，我们采用了患者和公众参与及介入方法，积极让患者、医护人员和研究人员作为关键贡献者参与Q-PHPO问卷的编制和评估。白血病缓解期儿童的家长和医护人员基于他们的生活经历提供了宝贵见解，影响了问卷内容，并通过评估问卷条目的相关性和清晰度做出了贡献。专门从事问卷编制和肿瘤学研究的人员对该工具进行了审查和完善，确保其效度和适用性。
