Rafique Ghazala, Shaikh Furqan
Department of Community Health Sciences, The Aga Khan University, Karachi.
J Pak Med Assoc. 2006 Aug;56(8):347-52.
To assess the needs, awareness and barriers to diabetes education for self management and to facilitate the initiation of an education programme promoting self care among diabetics and their families.
A qualitative study was conducted among adult diabetics attending outpatient clinics in a tertiary care teaching hospital in Karachi, Pakistan. Semi-structured interviews were conducted on 27 subjects (11 men; 16 women) to identify dominant themes and priority issues.
Participants displayed great deal of variation with respect to level of knowledge and motivation for education. Most believed that diabetes was caused by stress. Family was perceived to be a source of positive support. Relative ease of adherence to pharmacological regimens as compared to diet and exercise was reported. Participants expressed frustration at chronicity of disease and fear of developing certain specific complications and inheritance by their children. Barriers to enhancing knowledge included 'No need for further information', distance from training institutions and other priorities.
Knowledge, beliefs and fears about diabetes, family influence and accessibility of healthcare, affects management behaviours and learning. Understanding needs and expectations of people with diabetes is essential in initiating and improving the outcomes of education programme for diabetes self care.
评估糖尿病自我管理教育的需求、认知及障碍,并推动启动一项促进糖尿病患者及其家人自我护理的教育项目。
在巴基斯坦卡拉奇一家三级护理教学医院的门诊成年糖尿病患者中开展了一项定性研究。对27名受试者(11名男性;16名女性)进行了半结构式访谈,以确定主要主题和优先问题。
参与者在知识水平和教育动机方面存在很大差异。大多数人认为糖尿病是由压力引起的。家庭被视为积极支持的来源。与饮食和运动相比,参与者表示坚持药物治疗方案相对容易。参与者对疾病的慢性以及对子女患某些特定并发症和遗传的恐惧感到沮丧。提高知识的障碍包括“无需更多信息”、距离培训机构较远以及其他优先事项。
对糖尿病的知识、信念和恐惧、家庭影响以及医疗保健的可及性,都会影响管理行为和学习。了解糖尿病患者的需求和期望对于启动和改善糖尿病自我护理教育项目的效果至关重要。