Koller Donna, Khan Noshin, Barrett Shaun
Ryerson University, Toronto, Ontario, Canada
Ryerson University, Toronto, Ontario, Canada.
Qual Health Res. 2015 Feb;25(2):264-75. doi: 10.1177/1049732314551057. Epub 2014 Sep 29.
We conducted this qualitative study to explore children's and adolescents' perspectives about diabetes self-care, their knowledge of diabetes, and their emotions associated with having the disease. Drawing on the new sociological approach that acknowledges children's competence in discussing complex issues that concern them, we conducted individual interviews with a cross-sectional sample of 48 patients between the ages of 5 and 18 years. We recruited participants from a diabetes outpatient clinic within a large pediatric hospital in one of Canada's major urban centers. In this article, we present data from the following major themes: self-care, knowledge, and emotions. Through an in-depth analysis of these integrated themes, we offer validation that emotional support, along with disease education, provides supportive conditions for engaging in self-care and a process of acceptance.
我们开展了这项定性研究,以探究儿童和青少年对糖尿病自我护理的看法、他们对糖尿病的了解以及与患该疾病相关的情绪。借鉴新的社会学方法,即承认儿童有能力讨论与他们相关的复杂问题,我们对48名年龄在5至18岁之间的患者进行了横断面抽样的个人访谈。我们从加拿大一个主要城市中心的一家大型儿科医院的糖尿病门诊招募了参与者。在本文中,我们呈现了来自以下主要主题的数据:自我护理、知识和情绪。通过对这些综合主题的深入分析,我们证实了情感支持与疾病教育一起,为进行自我护理和接受过程提供了支持条件。