Pain Helen, Wiles Rose
Salisbury Healthcare NHS Trust, Salisbury, UK.
Disabil Rehabil. 2006 Oct 15;28(19):1211-20. doi: 10.1080/09638280600554561.
This qualitative study was designed to explore the experiences of disabled and severely obese people living in the community. The challenges that their size and disabilities posed within their homes and in accessing community facilities were explored, with particular reference to the provision and use of assistive technologies.
The study comprised in-depth interviews with a sample of six severely obese, disabled people using a grounded theory approach.
Three key themes emerged: the experience of daily life; accessing services; and responses to challenges. The study participants found that their home and community environments were seldom adequate for their size. Difficulties were identified in relation to accessing and using NHS services and negative attitudes and treatment from staff. Assessments and quality of assistive devices and housing adaptations received were criticised by some. Participants identified a range of responses to these challenges.
The challenges that obesity bring are compounded by disability, including the need for higher levels of care and the higher costs of assistive devices for this client group. The study suggests there may be a need for training for professionals who work with obese, disabled people to ensure their needs are met in appropriate and cost-effective ways.
本定性研究旨在探索居住在社区中的残疾及重度肥胖人群的经历。探讨了他们的体型和残疾状况在家庭及使用社区设施方面所带来的挑战,尤其涉及辅助技术的提供和使用。
本研究采用扎根理论方法,对六名重度肥胖的残疾人士进行了深入访谈。
出现了三个关键主题:日常生活经历;获取服务;应对挑战。研究参与者发现,他们的家庭和社区环境很少能满足他们的体型需求。在获取和使用国民保健服务(NHS)方面存在困难,且工作人员态度消极并给予差别对待。一些人对所接受的辅助设备评估及住房改造质量提出了批评。参与者确定了应对这些挑战的一系列方法。
肥胖带来的挑战因残疾而加剧,包括对更高护理水平的需求以及该客户群体辅助设备的更高成本。该研究表明,可能需要对与肥胖残疾人士打交道的专业人员进行培训,以确保以适当且具成本效益的方式满足他们的需求。