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乳腺钼靶筛查前及诊断后女性对导管原位癌的信息需求:一项定性研究

Women's information needs about ductal carcinoma in situ before mammographic screening and after diagnosis: a qualitative study.

作者信息

Prinjha Suman, Evans Julie, McPherson Ann

机构信息

DIPEx, Department of Primary Health Care, University of Oxford, Old Road Campus, Oxford OX3 7LF, England.

出版信息

J Med Screen. 2006;13(3):110-4. doi: 10.1258/096914106778440581.

DOI:10.1258/096914106778440581
PMID:17007650
Abstract

OBJECTIVES

To explore the attitudes of women with screen-detected ductal carcinoma in situ (DCIS) towards information provision for mammographic screening.

SETTING

Respondents recruited throughout the UK during 2003-2004.

METHODS

Qualitative study using semi-structured interviews.

PARTICIPANTS

Ten women diagnosed with DCIS as a result of mammographic screening.

RESULTS

None of the women with DCIS had heard of it before their diagnosis. Most would have liked more information about DCIS when invited for routine screening. Comprehensive information about the benefits and risks of mammographic screening, including the possibility of a DCIS diagnosis, would have enabled them to make a fully informed choice about attending for screening.

CONCLUSION

DCIS is an inescapable outcome of mammographic screening and, until it is better understood, the screening industry needs to inform women about its existence and the lack of understanding of its natural history and management. Being alerted before screening to the possibility of a DCIS diagnosis and the uncertainty associated with it would better enable women to make fully informed decisions about whether to attend and could help to alleviate some of the distress women currently feel when diagnosed with DCIS.

摘要

目的

探讨经乳腺钼靶筛查发现导管原位癌(DCIS)的女性对乳腺钼靶筛查信息提供的态度。

背景

2003年至2004年期间在英国各地招募的受访者。

方法

采用半结构式访谈的定性研究。

参与者

10名因乳腺钼靶筛查被诊断为DCIS的女性。

结果

所有DCIS女性在诊断前均未听说过该病。大多数女性在被邀请进行常规筛查时希望获得更多关于DCIS的信息。关于乳腺钼靶筛查的益处和风险的全面信息,包括DCIS诊断的可能性,将使她们能够就是否参加筛查做出充分知情的选择。

结论

DCIS是乳腺钼靶筛查不可避免的结果,在其得到更好的理解之前,筛查行业需要告知女性其存在以及对其自然史和治疗缺乏了解的情况。在筛查前提醒女性DCIS诊断的可能性及其相关的不确定性,将使女性能够就是否参加做出充分知情的决定,并有助于减轻女性目前被诊断为DCIS时所感受到的一些痛苦。

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