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知情同意:来自卡拉奇的观点

Informed consent: views from Karachi.

作者信息

Jafarey Aamir

机构信息

Centre of Biomedical Ethics and Culture, Sindh Institute of Urology and Transplantation, Karachi, Pakistan.

出版信息

East Mediterr Health J. 2006;12 Suppl 1:S50-5.

PMID:17037689
Abstract

Little is known about the public's perceptions about the process of obtaining informed consent for participation in medical research. A study was made of the views of patients, their attendants, parents, schoolteachers and office workers living in Karachi, Pakistan. Participants felt that informed consent was an important step in recruiting research participants but many felt that it was a trust-based process not requiring proper documentation. For recruiting women, both men and women believed it was important to approach women through their husbands and fathers. When there was a conflict with the opinions of family leaders, it was clear that the male participants' opinion was valued more than that of the female participants by both men and women.

摘要

对于公众对参与医学研究获得知情同意过程的看法,我们知之甚少。一项针对巴基斯坦卡拉奇的患者、其陪护人员、家长、学校教师和上班族的观点进行了研究。参与者认为知情同意是招募研究参与者的重要一步,但许多人认为这是一个基于信任的过程,不需要适当的文件记录。对于招募女性,男性和女性都认为通过其丈夫和父亲接触女性很重要。当与家庭负责人的意见发生冲突时,很明显男性参与者的意见比女性参与者的意见更受男性和女性重视。

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Ethical Issues in Conducting Cross-Cultural Research in Low-Income Countries: A Pakistani Perspective.在低收入国家开展跨文化研究中的伦理问题:巴基斯坦视角
Asian Bioeth Rev. 2021 Nov 6;14(2):151-168. doi: 10.1007/s41649-021-00196-w. eCollection 2022 Apr.
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Ann Med Surg (Lond). 2021 Dec 22;73:103195. doi: 10.1016/j.amsu.2021.103195. eCollection 2022 Jan.
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Attitudes of dental patients towards participation in research.牙科患者对参与研究的态度。
East Mediterr Health J. 2014 Mar 13;20(2):90-8.
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