Jafarey Aamir
Centre of Biomedical Ethics and Culture, Sindh Institute of Urology and Transplantation, Karachi, Pakistan.
East Mediterr Health J. 2006;12 Suppl 1:S50-5.
Little is known about the public's perceptions about the process of obtaining informed consent for participation in medical research. A study was made of the views of patients, their attendants, parents, schoolteachers and office workers living in Karachi, Pakistan. Participants felt that informed consent was an important step in recruiting research participants but many felt that it was a trust-based process not requiring proper documentation. For recruiting women, both men and women believed it was important to approach women through their husbands and fathers. When there was a conflict with the opinions of family leaders, it was clear that the male participants' opinion was valued more than that of the female participants by both men and women.
对于公众对参与医学研究获得知情同意过程的看法,我们知之甚少。一项针对巴基斯坦卡拉奇的患者、其陪护人员、家长、学校教师和上班族的观点进行了研究。参与者认为知情同意是招募研究参与者的重要一步,但许多人认为这是一个基于信任的过程,不需要适当的文件记录。对于招募女性,男性和女性都认为通过其丈夫和父亲接触女性很重要。当与家庭负责人的意见发生冲突时,很明显男性参与者的意见比女性参与者的意见更受男性和女性重视。