Becker S, Kaspar R, Kruse A
Institut für Gerontologie der Universität Heidelberg, Bergheimer Strasse 20, 69115, Heidelberg, Germany.
Z Gerontol Geriatr. 2006 Oct;39(5):350-7. doi: 10.1007/s00391-006-0408-0.
The HILDE project proceeds from a theoretical conception of quality of life which considers both the significance of objective living conditions claimed in the Swedish level of living approach and the significance of processes of subjective perceptions and judgements accentuated in the American quality of life approach. Since component definitions of quality of life regularly fail to reflect empirical relationships between the differentiated aspects, quality of life is defined as a constellation of personal and environmental material and immaterial resources and subjective wellbeing. Under the assumption that an adequate assessment of quality of life of people with dementia can not exclusively be based on their cognitive impairment, i.e. their stage of the disease, but must also reflect the realisation of individual preferences in a given life situation, the empirical portion of this contribution identifies and independently cross-validates in random subsamples four patterns of competence in a sample of 362 nursing home residents suffering from dementia. Each of these four different dementia syndrome groups is characterised by specific needs and values. They can be used as a point of reference within as well as between these competence groups, in order to plan individual interventions with competence-oriented expectations.
希尔德项目源于一种生活质量的理论概念，该概念既考虑了瑞典生活水平方法中所主张的客观生活条件的重要性，也考虑了美国生活质量方法中所强调的主观认知和判断过程的重要性。由于生活质量的组成部分定义常常无法反映不同方面之间的实证关系，因此生活质量被定义为个人和环境的物质与非物质资源以及主观幸福感的集合。基于这样的假设，即对痴呆症患者生活质量的充分评估不能仅仅基于他们的认知障碍，也就是疾病阶段，还必须反映在特定生活情境中个人偏好的实现情况，本论文的实证部分在362名患有痴呆症的养老院居民样本中，识别并在随机子样本中独立交叉验证了四种能力模式。这四个不同的痴呆症综合征组各自具有特定的需求和价值观。它们可作为这些能力组内部以及之间的参考点，以便按照以能力为导向的预期来规划个性化干预措施。
