Schenk Katie, Murove Tapfuma, Williamson Jan
Horizons Program, Population Council, Washington, DC, USA.
Health Hum Rights. 2006;9(1):80-100.
Program managers and researchers promoting children's rights to health, education, and an adequate standard of living often gather data directly from children to assess their needs and develop responsive services. Gathering information within a participatory framework recognizing children's views contributes to protection of their rights. Extra precautions, however, are needed to protect children because of the vulnerabilities associated with their developmental needs. Using case studies of ethical challenges faced by program implementers and sociobehavioral researchers, this article explores ways in which data collection activities among children may affect their rights. We suggest ways in which rights-based principles may be used to derive safeguards to protect against unintentional harm and abuses, based on a multidisciplinary consultation with researchers and service providers.
推动儿童享有健康、教育和适足生活水准权利的项目管理人员和研究人员，常常直接从儿童那里收集数据，以评估他们的需求并制定针对性的服务。在承认儿童观点的参与性框架内收集信息，有助于保护他们的权利。然而，由于与儿童发展需求相关的脆弱性，需要采取额外的预防措施来保护儿童。本文通过项目实施者和社会行为研究人员面临的伦理挑战案例研究，探讨了在儿童中开展数据收集活动可能影响其权利的方式。我们建议，在与研究人员和服务提供者进行多学科协商的基础上，如何运用基于权利的原则来制定保障措施，以防止意外伤害和滥用行为。
