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Tiered disclosure options promote the autonomy and well-being of research subjects.

作者信息

Rothstein Mark A

机构信息

Institute for Bioethics, Health Policy and Law, University of Louisville School of Medicine, USA.

出版信息

Am J Bioeth. 2006 Nov-Dec;6(6):20-1; author reply W10-2. doi: 10.1080/15265160600934871.

DOI:10.1080/15265160600934871
PMID:17085397
Abstract
摘要

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1
Tiered disclosure options promote the autonomy and well-being of research subjects.分层披露选项促进了研究对象的自主性和福祉。
Am J Bioeth. 2006 Nov-Dec;6(6):20-1; author reply W10-2. doi: 10.1080/15265160600934871.
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Thresholds and boundaries in the disclosure of individual genetic research results.个体基因研究结果披露中的阈值与界限
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When do genetic researchers have a duty to recontact study participants?基因研究人员何时有责任再次联系研究参与者？
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Ethical considerations in the communication of unexpected information with clinical implications.与临床意义相关的意外信息沟通中的伦理考量。
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Letting the gene out of the bottle: a comment on returning individual research results to participants.让基因走出“瓶子”：关于向参与者反馈个体研究结果的评论
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Obligations in offering to disclose genetic research results.主动披露基因研究结果的义务。
Am J Bioeth. 2006 Nov-Dec;6(6):44-6; author reply W10-2. doi: 10.1080/15265160600938575.
7
Questions, complexities, and limitations in disclosing individual genetic results.披露个体基因检测结果中的问题、复杂性和局限性。
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Taking our obligations to research participants seriously: disclosing individual results of genetic research.认真对待我们对研究参与者的义务：披露基因研究的个体结果。
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Disclosing genetic research results: examples from practice.披露基因研究结果：实践案例
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