Morrens Bert, Jonker Hans, Den Hond Elly, Coertjens Dries, Colles Ann, Schoeters Greet, Van Larebeke Nicolas, Nawrot Tim, Covaci Adrian, Nelen Vera, Vandermoere Frédéric, Loots Ilse
Faculty of Social Sciences, University of Antwerp, 2000 Antwerp, Belgium.
Department of Health, Provincial Institute of Hygiene, 2000 Antwerp, Belgium.
Toxics. 2021 Mar 28;9(4):69. doi: 10.3390/toxics9040069.
Communicating individual human biomonitoring results to study participants has been the subject of debate for some time. This debate is dominated by ethical considerations from a researchers' perspective on whether or not to communicate, thereby overlooking more practice-based questions from a participants' perspective on what and how to communicate. We conducted a small scale follow-up study based on eleven face-to-face interviews with mothers participating in the third cycle of the Flemish Environment and Health Study (FLEHS III 2012-2015) to investigate how they experienced and interpreted individual biomonitoring results. Key findings indicate that respondents were generally satisfied with participating in the biomonitoring study, but the report-back process especially lacked contextualized information and interactive communication options to better comprehend and cope with personal results. These findings also argue in favor of a more tailored approach in which report-back methods, formats and content are diversified according to the type of results and the preferences of participants. A reflexive research practice with active engagement in follow-up research is crucial to improve participants' understanding and use of personal biomonitoring results.
一段时间以来，向研究参与者传达个人人体生物监测结果一直是一个备受争议的话题。这场辩论主要是从研究人员的角度出发，围绕是否进行传达展开伦理考量，从而忽视了从参与者角度提出的更多基于实践的问题，比如传达什么以及如何传达。我们基于对参与佛兰德环境与健康研究第三轮（2012 - 2015年佛兰德环境与健康研究第三轮）的母亲们进行的11次面对面访谈，开展了一项小规模的后续研究，以调查她们如何体验和解读个人生物监测结果。主要研究结果表明，受访者总体上对参与生物监测研究感到满意，但反馈过程尤其缺乏情境化信息和互动交流选项，以帮助她们更好地理解和应对个人结果。这些研究结果还支持一种更具针对性的方法，即根据结果类型和参与者偏好，使反馈方法、形式和内容多样化。积极参与后续研究的反思性研究实践对于提高参与者对个人生物监测结果的理解和利用至关重要。
