Perspectives of patients and relatives about electroconvulsive therapy: a qualitative study from Vellore, India.

BACKGROUND

There has been little systematic study from developing countries on the perspectives of patients and their relatives about electroconvulsive therapy (ECT). This study attempted to ascertain the views of patients and their relatives on the possible benefits and adverse effects of ECT.

METHOD

Qualitative methodology using semistructured interviews, with the Short Explanatory Model Interview as the basis, was used to interview 52 patients who received ECT and their relatives before and after a course of the treatment. The most eloquent 10 among them were chosen for further in-depth interviews. Professional perception of efficacy and cognitive adverse effects were obtained from the patients' medical records.

RESULTS

More than half of the recipients were not aware of the details of ECT even at the end of the course but were not unhappy about receiving ECT. Most relatives believed in the disease model, considered the illness serious, felt that enough information about the treatment was provided, knew about its benefits and memory problems, and felt that they were offered an alternative choice of treatment, but also admitted to perceiving coercion. All relatives had signed the consent for treatment, and most were not unhappy with ECT. There were significant differences in perception between patients and relatives and between the perceptions of patients admitted to the hospital involuntarily and of those who agreed for admission. The difference between the clinicians' and the relatives' perceptions of benefits and cognitive adverse effects was not statistically significant.

CONCLUSIONS

The results of the study highlight the complex issues and contradictions in the process of providing information and obtaining consent for ECT.