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公众对风湿性疾病的忽视:来自肌肉骨骼疾病宣传活动参与者分析的见解

The public neglect of rheumatic diseases: insights from analyses of attendees in a musculoskeletal disease awareness activity.

作者信息

Machold Klaus P, Köller Marcus D, Pflugbeil Stephan, Zimmermann Christof, Wagner Ernst, Stuby Ulrike, Aletaha Daniel, Stamm Tanja A, Mayrhofer Franz, Dunky Attila, Hermann Josef, Ilias Wilfried, Smolen Josef S

机构信息

Department of Rheumatology, Internal Medicine III, Medical University of Vienna, Vienna, Austria.

出版信息

Ann Rheum Dis. 2007 May;66(5):697-9. doi: 10.1136/ard.2006.062422. Epub 2007 Jan 4.

Abstract

OBJECTIVES

To obtain data on the care received by individuals counselled during a public health awareness campaign on painful musculoskeletal conditions (MSC).

METHODS

Easy non-formal access to rheumatologists/pain specialists was offered using a mobile unit (Rheuma-Bus) at widely accessible sites. Clients were asked to assess their severity of pain using a 100 mm visual analogue scale (VAS). Age, gender, disease duration, diagnosis if known, current and previous treatment as well as tentative diagnoses assigned and recommendations given to each individual by the counselling physicians were recorded.

RESULTS

Average (SD) VAS pain rating was 59 (20.6) mm. Approximately 40% of clients had never consulted a physician for their condition before, but had lower pain scores than those who had seen a physician. Patients with inflammatory MSC had higher pain scores than those with non-inflammatory conditions. More than 2% of the clients had a newly detected inflammatory rheumatic disease.

CONCLUSIONS

Many individuals having painful MSC seek medical help only when a very high threshold of pain is reached. Even while under treatment, the high mean pain scores suggest neglect of MSC that are not adequately recognised as important contributors to disability and decreased quality of life.

摘要

目的

获取在一项关于疼痛性肌肉骨骼疾病(MSC)的公共卫生宣传活动中接受咨询的个体所获得护理的数据。

方法

通过一辆流动医疗车(风湿巴士)在广泛可达的地点提供便捷的非正规途径,让患者接触到风湿病学家/疼痛专家。要求客户使用100毫米视觉模拟量表(VAS)评估他们的疼痛严重程度。记录年龄、性别、疾病持续时间、已知诊断、当前和以前的治疗情况,以及咨询医生对每个个体做出的初步诊断和给出的建议。

结果

VAS疼痛评分平均值(标准差)为59(20.6)毫米。约40%的客户此前从未就其病情咨询过医生,但他们的疼痛评分低于看过医生的客户。炎症性MSC患者的疼痛评分高于非炎症性疾病患者。超过2%的客户被新检测出患有炎症性风湿疾病。

结论

许多患有疼痛性MSC的个体只有在疼痛阈值非常高时才寻求医疗帮助。即使在接受治疗时,较高的平均疼痛评分表明对MSC的忽视,而MSC并未被充分认识到是导致残疾和生活质量下降的重要因素。

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