Siebes R C, Wijnroks L, Ketelaar M, van Schie P E M, Gorter J W, Vermeer A
Utrecht University, Langeveld Institute for the Study of Education and Development in Childhood and Adolescence, Utrecht, the Netherlands.
Child Care Health Dev. 2007 Mar;33(2):196-205. doi: 10.1111/j.1365-2214.2006.00636.x.
The importance of family-centred care and services has been increasingly emphasized in paediatric rehabilitation. One aspect of family-centred care is parent involvement in their child's treatment. The aims of this study were (1) to describe how, and to what extent parents are involved in the paediatric rehabilitation treatment process in the Netherlands; (2) to determine the level of parents' satisfaction about the services they and their child have received; and (3) to describe what ideas parents have to enhance their involvement in the treatment process.
A total of 679 parents of children aged 1-20 years who participated in our longitudinal study on family centred care in the Netherlands. The children had various diagnoses and were treated in nine out of 23 Dutch paediatric rehabilitation centres. A random sample of 75 parents was interviewed within 4 weeks after completion of the Measure of Processes of Care and the Client Satisfaction Questionnaire. A Quality of Care cycle with six stages was used to structure the evaluation.
The data showed that parents are involved in all stages of their child's rehabilitation process in various ways. The average level of parent satisfaction about the services received was high. According to the interviewed parents, the communication between professionals and parents, parents' involvement in goal setting, and parents' involvement in treatment could be improved upon.
Parents are to a large extent involved in all stages of the treatment process in Dutch paediatric rehabilitation settings. Although parents valued the services received, they suggested various ways to enhance parent participation.
以家庭为中心的护理和服务在儿科康复中的重要性日益受到强调。以家庭为中心的护理的一个方面是父母参与孩子的治疗。本研究的目的是：（1）描述荷兰父母如何以及在多大程度上参与儿科康复治疗过程；（2）确定父母对他们及其孩子所接受服务的满意度；（3）描述父母对于增强他们在治疗过程中参与度的想法。
共有679名1至20岁儿童的父母参与了我们在荷兰进行的关于以家庭为中心护理的纵向研究。这些儿童有各种诊断，并在荷兰23家儿科康复中心中的9家接受治疗。在完成护理过程测量和客户满意度调查问卷后的4周内，对75名父母进行了随机抽样访谈。采用一个包含六个阶段的护理质量循环来构建评估。
数据显示，父母以各种方式参与孩子康复过程的各个阶段。父母对所接受服务的平均满意度较高。据受访父母称，专业人员与父母之间的沟通、父母在目标设定中的参与度以及父母在治疗中的参与度都有待提高。
在荷兰儿科康复环境中，父母在很大程度上参与了治疗过程的各个阶段。尽管父母重视所接受的服务，但他们提出了各种增强父母参与度的方法。
