Wang K-Y, Hsieh K, Heller T, Davidson P W, Janicki M P
Department of Social Welfare, National Chung Cheng University, Ming-Hsiung, Chia-yi. Taiwan.
J Intellect Disabil Res. 2007 Mar;51(Pt 3):173-83. doi: 10.1111/j.1365-2788.2006.00819.x.
The aim of the present study was to assess the health status of a cohort of adults with intellectual/developmental disabilities (I/DD) residing in family homes or institutions in Taiwan and to examine whether morbidity varied with age, sex, existing diagnosis [Down syndrome (DS), seizures, cerebral palsy (CP), intellectual disability (ID) level] and residential status.
Systematic randomization based on geographic areas was employed for sampling selection. Primary carers were interviewed to provide health-related information on individuals with I/DD aged 33 years or older living in institutions (n = 614) or living with their family (n = 514) in Taiwan.
Cardiovascular, neurological, visual and hearing impairments increased with age; while gastrointestinal, endocrine, infectious and dermatological diseases did not, after adjusting for sex, level of ID, presence of DS, seizures or CP, across settings. Institution cohorts were more likely to have infectious diseases, skin diseases, hepatitis or to be hepatitis carriers, and to have psychiatric disorders.
Organ system morbidity increased with age and generally was influenced by the same factors as have been reported for cohorts in western countries. The results also suggest that disease/condition outcomes may vary or be influenced differentially by residential setting.
本研究旨在评估居住在台湾家庭或机构中的一群成年智力/发育障碍(I/DD)患者的健康状况,并探讨发病率是否因年龄、性别、现有诊断(唐氏综合征(DS)、癫痫、脑瘫(CP)、智力残疾(ID)水平)和居住状况而有所不同。
采用基于地理区域的系统随机抽样方法进行样本选择。对主要照顾者进行访谈,以获取有关居住在台湾机构中的614名33岁及以上I/DD患者或与家人同住的514名I/DD患者的健康相关信息。
在对性别、ID水平、DS的存在、癫痫或CP进行调整后,心血管、神经、视觉和听力障碍随年龄增加;而胃肠道、内分泌、感染和皮肤病则不然,且在不同环境中均如此。机构队列更有可能患有传染病、皮肤病、肝炎或为肝炎携带者,以及患有精神疾病。
器官系统发病率随年龄增加,总体上受与西方国家队列中所报告的相同因素影响。结果还表明,疾病/状况结局可能因居住环境而异或受到不同影响。