Davis Elise, Nicolas Caroline, Waters Elizabeth, Cook Kay, Gibbs Lisa, Gosch Angela, Ravens-Sieberer Ulrike
School of Health and Social Development, Faculty of Health, Medicine, Nursing and Behavioural Sciences, Deakin University, Burwood, Victoria, 3125, Australia.
Qual Life Res. 2007 Jun;16(5):863-71. doi: 10.1007/s11136-007-9187-3. Epub 2007 Mar 10.
Although parent-proxy reports of health-related quality of life (HRQOL) are only moderately correlated with child reported HRQOL, it remains unknown why these scores differ. The aim of this study was to use a qualitative methodology to examine why parents and children report different levels of HRQOL.
The sample consisted of 15 parent-child pairs. A think-aloud technique was used where parents and children were given a generic HRQOL instrument (KIDSCREEN) and instructed to share their thoughts with the interviewer. Qualitative analyses were conducted to assess whether parents and children base their answer on different experiences or reasoning, have different response styles, or interpret the items differently.
There was discordance between parents and children, in terms of rating scale and in terms of the reasoning for their answer. Children tended to have different response styles to parents, where for example, children tended to provide extreme scores (highest or lowest score) and base their response on one single example, more than parents. Parents and children interpreted the meaning of the items very similarly.
This study provides evidence to suggest that discordance among parent-child pairs on KIDSCREEN scores may be as a result of different reasoning and different response styles, rather than interpretation of items. These findings have important implications when parent-proxy reported HRQOL is used to guide clinical/treatment decisions.
尽管父母代理报告的健康相关生活质量（HRQOL）与儿童报告的HRQOL仅有中等程度的相关性，但这些分数为何不同仍不清楚。本研究的目的是使用定性方法来探究父母和儿童报告不同水平HRQOL的原因。
样本包括15对亲子。采用出声思考技术，给父母和儿童一份通用的HRQOL工具（儿童生活质量量表），并指示他们与访谈者分享自己的想法。进行定性分析以评估父母和儿童给出答案是基于不同的经历或推理、具有不同的回答方式，还是对项目有不同的理解。
父母和儿童在评分量表以及回答的推理方面存在不一致。儿童对父母的回答方式往往不同，例如，儿童倾向于给出极端分数（最高分或最低分），并且其回答基于单个例子的情况比父母更多。父母和儿童对项目含义的理解非常相似。
本研究提供的证据表明，亲子对儿童生活质量量表分数的不一致可能是由于不同的推理和不同的回答方式，而非对项目的理解。当使用父母代理报告的HRQOL来指导临床/治疗决策时，这些发现具有重要意义。
