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如何处理亲子照料者意见不合的问题。

How we approach sharing child-caregiver PRO disagreement.

机构信息

Division of Supportive and Palliative Care, Mass General for Children, Boston, Massachusetts, USA.

Department of Nursing Science, Professional Practice and Quality, Children's National Hospital, Washington, District of Columbia, USA.

出版信息

Pediatr Blood Cancer. 2024 Feb;71(2):e30783. doi: 10.1002/pbc.30783. Epub 2023 Nov 27.

Abstract

Researchers use patient-reported outcomes (PRO) to capture the patient experience, and in pediatrics, parent report of symptom and function often accompanies the child's assessment. Children with cancer and their family caregivers frequently evaluate symptom burden and functional status differently. Child-caregiver PRO disagreement often worries pediatric oncology clinicians, who do not know how to best approach sharing it with families. Openly discussing differences in symptom and functional status reporting is a crucial element of supporting families and can improve family harmony throughout the child's illness journey. This paper offers strategies and language for communicating with families about PRO disagreement.

摘要

研究人员使用患者报告的结果(PRO)来捕捉患者的体验,在儿科中,父母对症状和功能的报告通常伴随着孩子的评估。患有癌症的儿童及其家庭照顾者经常对症状负担和功能状态的评估存在差异。儿科肿瘤临床医生经常担心患儿和照顾者的 PRO 不一致,他们不知道如何最好地与家庭分享这些信息。公开讨论症状和功能状态报告的差异是支持家庭的一个关键因素,可以在整个儿童患病过程中改善家庭和谐。本文提供了与家庭沟通 PRO 不一致的策略和语言。

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本文引用的文献

1
Agreement and disagreement between child-caregiver symptom and function reports in pediatric oncology.
Pediatr Blood Cancer. 2024 Jan;71(1):e30710. doi: 10.1002/pbc.30710. Epub 2023 Oct 12.
2
Patient-Reported Outcome Benefits for Children with Advanced Cancer and Parents: A Qualitative Study.
J Pain Symptom Manage. 2023 Sep;66(3):e327-e334. doi: 10.1016/j.jpainsymman.2023.05.016. Epub 2023 Jun 6.
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