Public goods, private data: HIV and the history, ethics, and uses of identifiable public health information.
作者信息
Fairchild Amy L, Gable Lance, Gostin Lawrence O, Bayer Ronald, Sweeney Patricia, Janssen Robert S
机构信息
Center for the History and Ethics of Public Health, Columbia University Mailman School of Public Health, New York, NY, USA.
出版信息
Public Health Rep. 2007;122 Suppl 1(Suppl 1):7-15. doi: 10.1177/00333549071220S103.
Abstract
摘要
相似文献
1
Public goods, private data: HIV and the history, ethics, and uses of identifiable public health information.公共物品，私人数据：艾滋病病毒与可识别公共卫生信息的历史、伦理及用途
Public Health Rep. 2007;122 Suppl 1(Suppl 1):7-15. doi: 10.1177/00333549071220S103.
2
Ethical collection, storage, and use of public health data: a proposal for a national privacy protection.公共卫生数据的伦理收集、存储和使用：一项国家隐私保护提案
JAMA. 2009 Jul 1;302(1):82-4. doi: 10.1001/jama.2009.958.
3
Privacy and the secondary use of data in health research in Scotland.苏格兰健康研究中的隐私与数据二次使用
J Health Serv Res Policy. 2003 Jul;8 Suppl 1:S1:12-6. doi: 10.1258/135581903766468828.
4
Confidentiality of medical information after death.死后医学信息的保密性。
JAMA. 2007 Jun 20;297(23):2585; author reply 2585. doi: 10.1001/jama.297.23.2585-b.
5
Access to health care records after death: balancing confidentiality with appropriate disclosure.死后获取医疗记录：平衡保密性与适当披露
JAMA. 2007 Feb 14;297(6):634-6. doi: 10.1001/jama.297.6.634.
6
The effect of public disclosure laws on biomedical research.公开披露法律对生物医学研究的影响。
J Am Assoc Lab Anim Sci. 2012 May;51(3):306-10.
7
Disclosure of patient records.患者记录的披露。
Emerg Nurse. 2007 Oct;15(6):18-9.
8
Confidentiality in health care: conflicting legal and ethical issues.医疗保健中的保密性：相互冲突的法律和伦理问题。
Nurs Stand. 2007;21(21):42-6. doi: 10.7748/ns2007.01.21.21.42.c4513.
9
Learning from experience: privacy and the secondary use of data in health research.从经验中学习：健康研究中的隐私与数据二次使用
J Health Serv Res Policy. 2003 Jul;8 Suppl 1:S1:2-7. doi: 10.1258/135581903766468800.
10
Statutory basis for public health reporting beyond specific diseases.特定疾病之外公共卫生报告的法定依据。
J Urban Health. 2003 Jun;80(2 Suppl 1):i14-22. doi: 10.1007/pl00022310.
引用本文的文献
1
The potential of federated learning for public health purposes: a qualitative analysis of GDPR compliance, Europe, 2021.联邦学习在公共卫生领域的潜力：对 GDPR 合规性的定性分析，欧洲，2021 年。
Euro Surveill. 2024 Sep;29(38). doi: 10.2807/1560-7917.ES.2024.29.38.2300695.
2
Health policy counterpublics: Enacting collective resistances to US molecular HIV surveillance and cluster detection and response programs.健康政策反公域：对美国分子 HIV 监测和集群检测与应对项目实施集体抵制
Soc Stud Sci. 2024 Jun;54(3):451-477. doi: 10.1177/03063127231211933. Epub 2023 Dec 6.
3
Advancing a Data Justice Framework for Public Health Surveillance.推进公共卫生监测的数据公正框架。
AJOB Empir Bioeth. 2022 Jul-Sep;13(3):205-213. doi: 10.1080/23294515.2022.2063997. Epub 2022 Apr 20.
4
Furthering Discussion of Ethical Implementation of HIV Cluster Detection and Response.推进关于艾滋病毒聚集性检测与应对伦理实施的讨论。
Am J Bioeth. 2020 Oct;20(10):24-26. doi: 10.1080/15265161.2020.1806398.
5
Practical and Ethical Concerns in Implementing Enhanced Surveillance Methods to Improve Continuity of HIV Care: Qualitative Expert Stakeholder Study.实施增强监测方法以提高艾滋病毒护理连续性的实际和伦理问题：定性专家利益攸关方研究。
JMIR Public Health Surveill. 2020 Sep 4;6(3):e19891. doi: 10.2196/19891.
6
Expert stakeholders' perspectives on a Data-to-Care strategy for improving care among HIV-positive individuals incarcerated in jails.专家利益相关者对改善监狱中感染艾滋病毒者护理的数据到护理策略的看法。
AIDS Care. 2020 Sep;32(9):1155-1161. doi: 10.1080/09540121.2020.1737641. Epub 2020 Mar 11.
7
Societal Implications of the Internet of Pathogens.病原体互联网的社会影响。
J Clin Microbiol. 2019 May 24;57(6). doi: 10.1128/JCM.01914-18. Print 2019 Jun.
8
Using HIV Surveillance Data to Link People to HIV Medical Care, 5 US States, 2012-2015.利用艾滋病毒监测数据将感染者与艾滋病毒医疗服务联系起来，美国 5 个州，2012-2015 年。
Public Health Rep. 2018 Jul/Aug;133(4):385-391. doi: 10.1177/0033354918772057. Epub 2018 May 11.
9
Health Information Economy: Literature Review.健康信息经济：文献综述
Glob J Health Sci. 2015 Apr 19;7(6):250-7. doi: 10.5539/gjhs.v7n6p250.
10
Art, (in)visibility, and Ebola: "What are the consequences of a digitally-created society in the psyche of the global community?".艺术、（不可）见性与埃博拉：“数字创造的社会在全球社会心理中会产生什么后果？”
J Bioeth Inq. 2014 Dec;11(4):405-11. doi: 10.1007/s11673-014-9589-1. Epub 2014 Nov 23.
本文引用的文献
1
A model state law for morbidity reports. 1913.一份发病率报告的模范州法律。1913年。
Public Health Rep. 2006;121 Suppl 1:71-4; discussion 70.
2
Applying public health principles to the HIV epidemic.将公共卫生原则应用于艾滋病流行情况。
N Engl J Med. 2005 Dec 1;353(22):2397-402. doi: 10.1056/NEJMsb053133.
3
Prescribing privacy: the uncertain role of the physician in the protection of patient privacy.处方隐私：医生在保护患者隐私方面的不确定作用。
North Carol Law Rev. 1984 Jan;62(2):255-94.
4
The genesis of public health ethics.公共卫生伦理的起源。
Bioethics. 2004 Nov;18(6):473-92. doi: 10.1111/j.1467-8519.2004.00412.x.
5
Dealing with Humpty Dumpty: research, practice, and the ethics of public health surveillance.应对“矮胖子”：公共卫生监测的研究、实践与伦理
J Law Med Ethics. 2003 Winter;31(4):615-23. doi: 10.1111/j.1748-720x.2003.tb00129.x.
6
The surveillance of communicable diseases of national importance.对具有国家重要性的传染病的监测。
N Engl J Med. 1963 Jan 24;268:182-92. doi: 10.1056/NEJM196301242680405.
7
HIV/AIDS surveillance in the United States, 1981-2001.1981 - 2001年美国的艾滋病毒/艾滋病监测
J Acquir Immune Defic Syndr. 2003 Feb;32 Suppl 1:S68-85.
8
Public health ethics: mapping the terrain.公共卫生伦理学：描绘领域
J Law Med Ethics. 2002 Summer;30(2):170-8. doi: 10.1111/j.1748-720x.2002.tb00384.x.
9
Whalen v. Roe. 22 Feb 1977.惠伦诉罗案。1977年2月22日。
U S Rep U S Supreme Court. 1977;429:589-609.
10
Ethics and public health: forging a strong relationship.伦理与公共卫生：建立牢固关系。
Am J Public Health. 2002 Feb;92(2):169-76. doi: 10.2105/ajph.92.2.169.
Zotero 插件