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专家利益相关者对改善监狱中感染艾滋病毒者护理的数据到护理策略的看法。

Expert stakeholders' perspectives on a Data-to-Care strategy for improving care among HIV-positive individuals incarcerated in jails.

作者信息

Buchbinder Mara, Blue Colleen, Juengst Eric, Brinkley-Rubinstein Lauren, Rennie Stuart, Rosen David L

机构信息

Department of Social Medicine, Center for Bioethics, UNC Chapel Hill School of Medicine, Chapel Hill, NC, USA.

Institute for Global Health and Infectious Diseases, UNC Chapel Hill, Chapel Hill, NC, USA.

出版信息

AIDS Care. 2020 Sep;32(9):1155-1161. doi: 10.1080/09540121.2020.1737641. Epub 2020 Mar 11.

Abstract

Data-to-Care (D2C) uses surveillance data (e.g., laboratory, Medicaid billing) to identify out-of-care HIV-positive persons to re-link them to care. Most US states are implementing D2C, yet few studies have explored stakeholders' perspectives on D2C, and none have addressed these perspectives in the context of D2C in jail. This article reports findings from qualitative, semi-structured interviews conducted with expert stakeholders regarding their perspectives on the ethical challenges of utilizing D2C to understand and improve continuity of care among individuals incarcerated in jails. Participants included 47 professionals with expertise in ethics and privacy, public health and HIV care, the criminal justice system, and community advocacy. While participants expressed a great deal of support for extending D2C to jails, they also identified many possible risks. Stakeholders discussed many issues specific to D2C in jails, such as heightened stigma in the jail setting, the need for training of jail staff and additional non-medical community-based resources, and the high priority of this vulnerable population. Many experts suggested that the actual likelihood of benefits and harms would depend on contextual details. Implementation of D2C in jails may require novel strategies to minimize risk of disclosing out-of-care patients' HIV status.

摘要

数据到关怀(D2C)利用监测数据(如实验室数据、医疗补助计费数据)来识别失访的艾滋病毒阳性患者,以便重新将他们与医疗服务联系起来。美国大多数州都在实施D2C,但很少有研究探讨利益相关者对D2C的看法,而且没有一项研究在监狱环境下的D2C背景下探讨这些看法。本文报告了对专家利益相关者进行定性、半结构化访谈的结果,这些访谈涉及他们对利用D2C理解和改善监狱中被监禁人员的医疗连续性所面临的伦理挑战的看法。参与者包括47名在伦理与隐私、公共卫生与艾滋病毒护理、刑事司法系统以及社区宣传等方面具有专业知识的专业人员。虽然参与者对将D2C扩展到监狱表示了极大的支持,但他们也指出了许多可能的风险。利益相关者讨论了许多监狱中D2C特有的问题,如监狱环境中耻辱感加剧、监狱工作人员培训的必要性以及额外的非医疗社区资源,以及这一弱势群体的高度优先性。许多专家表示,实际的受益和危害可能性将取决于具体情况细节。在监狱中实施D2C可能需要新的策略,以尽量减少披露失访患者艾滋病毒状况的风险。

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