Ware Norma C, Hopper Kim, Tugenberg Toni, Dickey Barbara, Fisher Daniel
Department of Psychiatry, Harvard Medical School, Cambridge, Massachusetts, USA.
Psychiatr Serv. 2007 Apr;58(4):469-74. doi: 10.1176/ps.2007.58.4.469.
Despite decades of deinstitutionalization, individuals with psychiatric disabilities living outside the hospital may be described as in the community, but not of it. To effectively address the persisting problem of social exclusion of persons with psychiatric disabilities, new conceptual tools are needed. To address this need, a new definition of social integration is offered.
The definition is based on data from a qualitative study. Data collection consisted of individual, unstructured interviews with 56 adults who have been psychiatrically disabled (N=78 interviews) as well as ethnographic visits to five service sites working to promote social integration for their users (N=8 visits). An interpretive approach was used to analyze the data.
Social integration is defined as a process, unfolding over time, through which individuals who have been psychiatrically disabled increasingly develop and exercise their capacities for connectedness and citizenship. Connectedness denotes the construction and successful maintenance of reciprocal interpersonal relationships. Social, moral, and emotional competencies are required to sustain connectedness. Citizenship refers to the rights and privileges enjoyed by members of a democratic society and to the responsibilities these rights engender. The definition calls for full rights and responsibilities of citizenship.
The new definition sets an ideal, but not unrealistic, standard for social integration in the context of psychiatric disability. High standards encourage mental health professionals and policy makers to rethink what is possible for mental health services and to raise expectations for connectedness and citizenship among persons once disabled by mental illness.
尽管去机构化已推行数十年,但生活在医院之外的精神疾病患者虽身处社区,却未真正融入其中。为有效解决精神疾病患者持续面临的社会排斥问题,需要新的概念工具。为满足这一需求,本文提出了社会融合的新定义。
该定义基于一项定性研究的数据。数据收集包括对56名有精神疾病的成年人进行的个体非结构化访谈(共78次访谈),以及对五个致力于促进其服务对象社会融合的服务场所进行的人种志访问(共8次访问)。采用解释性方法对数据进行分析。
社会融合被定义为一个随着时间推移而展开的过程,在此过程中,有精神疾病的个体逐渐发展并行使其建立联系和成为公民的能力。建立联系意味着构建并成功维持相互的人际关系。维持联系需要社会、道德和情感能力。公民身份指民主社会成员所享有的权利和特权以及这些权利所带来的责任。该定义要求享有完整的公民权利和承担公民责任。
新定义为精神疾病背景下的社会融合设定了一个理想但并非不切实际的标准。高标准促使心理健康专业人员和政策制定者重新思考心理健康服务的可能性,并提高对曾经因精神疾病而致残者建立联系和获得公民身份的期望。