Hu Wendy, Grbich Carol, Kemp Andrew
Department of Allergy, Immunology and Infectious Diseases, The Children's Hospital at Westmead, Locked Bag 4001, Westmead, NSW 2145, Australia.
Arch Dis Child. 2007 Sep;92(9):771-5. doi: 10.1136/adc.2006.114975. Epub 2007 May 8.
To examine information needs and preferences of parents regarding food allergy.
Qualitative study including in-depth semi-structured interviews and focus group discussions. Data were audio-recorded, transcribed verbatim and analysed using the constant comparative method, aided by participant checking of interview summaries, independent reviewers and qualitative analysis software.
84 parents of children with food allergy.
Three paediatric allergy clinics and a national consumer organisation.
Most parent participants had received third level education (72%) and 39% had occupational backgrounds in health and education. Parents experienced different phases in their need for information: at diagnosis when there is an intense desire for information, at follow-up when there is continuing uncertainty about allergy severity and appropriate management, and at new events and milestones. They preferred information to be provided in a variety of formats, with access to reliable individualised advice between clinic appointments, within the context of an ongoing relationship with a health professional. Parents wished to know the reasoning behind doctor's opinions and identified areas of core information content, including unaddressed topics such as what to feed their child rather than what to avoid. Suboptimal information provision was cited by parents as a key reason for seeking second opinions.
Parents with children with food allergies have unmet information needs. Study findings may assist in the design and implementation of targeted educational strategies which better meet parental needs and preferences.
探讨家长对于食物过敏的信息需求和偏好。
定性研究，包括深入的半结构化访谈和焦点小组讨论。数据进行了录音、逐字转录，并采用持续比较法进行分析，同时借助参与者对访谈总结的核对、独立评审员和定性分析软件。
84名食物过敏儿童的家长。
三家儿科过敏诊所和一个全国性消费者组织。
大多数参与研究的家长接受过高等教育（72%），39%有健康和教育领域的职业背景。家长在信息需求方面经历了不同阶段：诊断时强烈渴望获取信息，随访时对过敏严重程度和适当管理仍存在不确定性，以及在新事件和重要阶段。他们希望以多种形式提供信息，在与医疗专业人员持续的关系背景下，在门诊预约期间能够获得可靠的个性化建议。家长希望了解医生意见背后的理由，并确定了核心信息内容领域，包括未涉及的主题，如给孩子吃什么而不是避免吃什么。家长将信息提供不足列为寻求二次诊断的关键原因。
食物过敏儿童的家长存在未满足的信息需求。研究结果可能有助于设计和实施更能满足家长需求和偏好的针对性教育策略。
