Nasr Esfahani Farnaz, Hakim Shooshtari Mitra, Shirmohammadi Sosfadi Rasoul, Saeed Fahimeh, Jalai Fereshteh, Farsham Aida, Bidaki Reza
Mental Health Research Center, Tehran Institute of Psychiatry, School of Medicine, Iran University of Medicine Sciences, Tehran, Iran.
Iran University of Medicine Sciences, Tehran, Iran.
Iran J Psychiatry. 2018 Jul;13(3):191-199.
This study was conducted to recognize the problems of living with a sibling with Autistic Spectrum Disorder (ASD) to improve their quality of life. A total of 30 participants were selected among the 4-to11- year-old siblings of children who had referred to Tehran Psychiatric Institute due to autism spectrum disorder. For the control group, 30 children aged 4 to11years old who were the siblings of patients with chronic diseases referring to Pediatric Clinic of Rasoul-e Akram (PBUH) hospital were selected. Gilliam Autism Rating Scale-Second Edition (GARS-2) was filled out for patients and siblings participating in the study and Child Behavior Checklist was completed by their parents. The mean age of the patients in this study was 4.46 ± 9.66 years (range: 1.5-22 years), and the mean age in the healthy children was 2.54 ± 8.18 years (range: 4-11 years). The mean scores of anxiety/depression, withdrawn/depressed, somatic complaints, social problems, thought problems, attention problems, and rule-breaking behavior subscale of CBCL (Child Behavior Checklist) were not significantly different between groups. Aggressive behavior was the only subscale that showed such difference (p = 0.008). Externalizing problems in children who had siblings with ASD was higher than children who had siblings with physical illness. In a group in which a sibling had ASD, sisters were more anxious/ depressed than brothers. Due to various psychological and social problems that siblings of children with ASD experience throughout their life, studying their psychological problems to improve their quality of life seems to be of paramount importance.
本研究旨在认识与患有自闭症谱系障碍(ASD)的兄弟姐妹一起生活所面临的问题,以提高他们的生活质量。在因自闭症谱系障碍转诊至德黑兰精神病学研究所的儿童的4至11岁兄弟姐妹中,共选取了30名参与者。对于对照组,选取了30名4至11岁的儿童,他们是转诊至拉苏勒·阿克ram(愿主福安之)医院儿科诊所的慢性病患者的兄弟姐妹。为参与研究的患者及其兄弟姐妹填写了《吉尔姆自闭症评定量表第二版》(GARS - 2),并由他们的父母完成了《儿童行为清单》。本研究中患者的平均年龄为4.46±9.66岁(范围:1.5 - 22岁),健康儿童的平均年龄为2.54±8.18岁(范围:4 - 11岁)。两组之间,《儿童行为清单》(CBCL)的焦虑/抑郁、退缩/抑郁、躯体不适、社交问题、思维问题、注意力问题和违规行为分量表的平均得分无显著差异。攻击性行为是唯一显示出这种差异的分量表(p = 0.008)。有患ASD兄弟姐妹的儿童的外化问题高于有患身体疾病兄弟姐妹的儿童。在有兄弟姐妹患ASD的群体中,姐妹比兄弟更焦虑/抑郁。由于ASD儿童的兄弟姐妹在其一生中会经历各种心理和社会问题,研究他们的心理问题以提高其生活质量似乎至关重要。