Allen Helen, Maxwell Lynn, Dibley Nikki, Bradley Angela, Baker Roger, Thomas Peter, McBride Donna
Dorset RDSU, Cornelia House, Poole Hospital NHS Trust, Longfleet Road, Poole, BH15 2JB, UK.
Fam Cancer. 2007;6(2):231-9. doi: 10.1007/s10689-007-9135-y. Epub 2007 May 23.
Focussing on the primary care aspects of the Kenilworth model, the Poole Primary Care Trust (PCT) cancer genetics service has aimed to develop a high quality primary care-led service for the assessment and counselling of people concerned about their genetic risk of cancer. The service has been available through General Practitioner (GP) surgeries within the PCT since early 2006, and is delivered by Community Cancer Nurses as part of their role to provide proactive care and support to cancer patients, their families and the local population. Acting as a point of reference for cancer genetics at each practice, the nurses have supplied basic education to both health professionals and lay staff about the aims of the service and the genetic risk of cancer. Feedback from service users is one of the key elements of the Poole evaluation. This article is based on the views of some of the first patients referred. The patients consulted one of the cancer nurses between June and December 2006, and were interviewed by a researcher about their experience. The interviews focussed on the psychosocial aspects of the patients' experiences, which are less accessible through quantitative methods. The patients were encouraged to talk specifically and generally about their experiences, and described some of the feelings and emotions from the time of their referral onwards.
普尔初级保健信托基金（PCT）的癌症遗传学服务聚焦于凯尼尔沃思模式的初级保健方面，旨在开发一项由初级保健主导的高质量服务，用于评估和咨询那些担心自身患癌遗传风险的人群。自2006年初以来，该服务可通过PCT内的全科医生（GP）诊所获得，由社区癌症护士提供，这是她们为癌症患者、其家人及当地居民提供积极护理和支持职责的一部分。作为各诊所癌症遗传学的参考点，护士们向卫生专业人员和非专业工作人员提供了关于该服务目标及癌症遗传风险的基础教育。服务使用者的反馈是普尔评估的关键要素之一。本文基于首批转诊患者中的一些人的观点。这些患者在2006年6月至12月期间咨询了其中一位癌症护士，并接受了一名研究人员关于其经历的访谈。访谈聚焦于患者经历的心理社会方面，这些方面通过定量方法较难获取。鼓励患者具体和总体地谈论他们的经历，并描述从转诊之时起的一些感受和情绪。
