Read Debra, Bethell Christina, Blumberg Stephen J, Abreu Milagros, Molina Clara
Department of Pediatrics, School of Medicine, The Child and Adolescent Health Measurement Initiative, Oregon Health and Science University, 707 SW Gaines Road, Mail Code CDRCP, Portland, OR 97239-2998, USA.
Matern Child Health J. 2007 Nov;11(6):568-85. doi: 10.1007/s10995-007-0207-2. Epub 2007 Jun 12.
The 2001 National Survey of Children with Special Health Care Needs (CSHCN) used the CSHCN Screener, a 5-item survey based tool, to identify children with special health care needs. The prevalence of special health care needs for Hispanic children was lower than that reported for all other ethnic and racial groups, with the exception of Asian children. To better understand the reasons for the lower prevalence rate, this study examined variations in CSHCN prevalence for Hispanic children according to whether parents responded to the National Survey of CSHCN screening interview in Spanish or English. The Spanish translation of the CSHCN Screener was further evaluated through a series of face-to-face interviews with parents with limited English proficiency (LEP).
The 2001 National Survey of CSHCN screened 372,174 children ages 0-17 years for special health care needs. Bivariate and multivariate analyses were conducted to examine the effects of interview language on the CSHCN prevalence rates for Hispanic children (n = 47,371). Using a standardized protocol, cognitive interviews were conducted in Spanish with 19 LEP parents to elicit their comprehension of and reactions to the screening questions.
When parents were interviewed in English, 11.7% of Hispanic children were identified as CSHCN. When parents were interviewed in Spanish, 5.1% of Hispanic children were identified as CSHCN. Lower prevalence of the need for or use of prescription medications for chronic conditions made the largest contribution to the observed difference in CSHCN prevalence. Cognitive interviews with parents did not identify any linguistic or cultural deficiencies in the Spanish translation of the CSHCN Screener. Parents did express disinclination toward sharing details of their children's health in the context of a typical telephone survey.
2001年全国特殊医疗需求儿童调查（CSHCN）使用基于5项调查问卷的CSHCN筛查工具来识别有特殊医疗需求的儿童。西班牙裔儿童的特殊医疗需求患病率低于除亚裔儿童外的所有其他种族和族裔群体报告的患病率。为了更好地理解患病率较低的原因，本研究根据父母是以西班牙语还是英语回应CSHCN筛查访谈，调查了西班牙裔儿童CSHCN患病率的差异。通过与英语水平有限（LEP）的父母进行一系列面对面访谈，对CSHCN筛查工具的西班牙语翻译进行了进一步评估。
2001年全国CSHCN调查对372,174名0至17岁儿童进行了特殊医疗需求筛查。进行了双变量和多变量分析，以检查访谈语言对西班牙裔儿童（n = 47,371）CSHCN患病率的影响。使用标准化方案，对19名LEP父母进行了西班牙语认知访谈，以了解他们对筛查问题的理解和反应。
当用英语对父母进行访谈时，11.7%的西班牙裔儿童被确定为有特殊医疗需求。当用西班牙语对父母进行访谈时，5.1%的西班牙裔儿童被确定为有特殊医疗需求。慢性病处方药需求或使用的较低患病率对观察到的CSHCN患病率差异贡献最大。对父母的认知访谈未发现CSHCN筛查工具西班牙语翻译中的任何语言或文化缺陷。在典型的电话调查背景下，父母确实表示不愿意分享孩子健康的细节。
