持续皮下胰岛素输注（CSII）的应用：家长和专业人士对儿童及青少年自我护理掌握程度和自主性的看法。
The use of Continuous Subcutaneous Insulin Infusion (CSII): parental and professional perceptions of self-care mastery and autonomy in children and adolescents.
作者信息
Weissberg-Benchell Jill, Goodman Shirley S, Antisdel Lomaglio Jeanne, Zebracki Kathy
机构信息
Childrens's Memorial Hospital, Department of Child and Adolescent Psychiatry, Feinberg School of Medcicine, Northwestern University, 2300 Children's Plaza, Box 10, Chicago, Illinois 60614, USA.
出版信息
J Pediatr Psychol. 2007 Nov-Dec;32(10):1196-202. doi: 10.1093/jpepsy/jsm050. Epub 2007 Jun 28.
OBJECTIVE
To describe parent-perceived mastery of Continuous Subcutaneous Insulin Infusion (CSII) specific skills and level of autonomy for these tasks among youth with type 1 diabetes.
METHODS
One hundred and sixty-three parents of youth using CSII and 142 diabetes clinicians participated. Parents reported their child's mastery and autonomy of CSII-specific skills. Clinicians indicated the age at which 50% of their patients mastered these skills.
RESULTS
Parents report CSII skill mastery between 10.9 and 12.8 years. Very few achieved skill mastery on all CSII-related tasks. Parent- and clinician-expectations for age of skill acquisition were consistent with one another. Parents shared CSII task responsibility with their children even after their children have attained skill mastery.
CONCLUSION
The recent emphasis on maintaining parental involvement in diabetes care seems to have been translated into clinical practice. Parents remain involved in their child's CSII care even after they believe their child has mastered these skills.
目的
描述1型糖尿病青少年的父母所感知到的其对持续皮下胰岛素输注（CSII）特定技能的掌握情况以及这些任务的自主水平。
方法
163名使用CSII的青少年的父母和142名糖尿病临床医生参与了研究。父母报告了他们孩子对CSII特定技能的掌握情况和自主水平。临床医生指出他们50%的患者掌握这些技能的年龄。
结果
父母报告CSII技能掌握年龄在10.9至12.8岁之间。很少有人在所有与CSII相关的任务上都达到技能掌握。父母和临床医生对技能习得年龄的期望彼此一致。即使孩子已经掌握了技能，父母仍与孩子分担CSII任务责任。
结论
最近对保持父母参与糖尿病护理的强调似乎已转化为临床实践。即使父母认为他们的孩子已经掌握了这些技能，他们仍参与孩子的CSII护理。
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