Department of Pediatrics, Division of Endocrinology and Diabetes, University of Massachusetts Medical School, Worcester, MA, USA.
Diabetes Technol Ther. 2013 Jul;15(7):591-5. doi: 10.1089/dia.2013.0031. Epub 2013 Jun 25.
The purpose of this study is to determine whether parental knowledge of the continuous subcutaneous insulin infusion (CSII) device affects glycemic control as measured by hemoglobin A1c (A1C) level.
Parents of children with type 1 diabetes mellitus (T1DM) using CSII completed a 14-item questionnaire. Questions 1-10 were knowledge-based questions that required the parent to extract specific information from their child's CSII device. Questions 11-14 asked parents to provide a self-assessment of their CSII knowledge.
Twenty-two parents of youth with T1DM participated in the study. Ten of the youth were in the Low-A1C group (A1C<8%), and the other 12 were in the High-A1C group (A1C≥8%). Parents of youth in the Low-A1C group scored statistically better on the 10-item performance survey than parents of youth in the High-A1C group. Most of the parents of children in the Low-A1C group responded that they knew their child's insulin pump "very well" and that their pump knowledge had "increased" since their child started on the insulin pump.
Our findings reveal that youth with T1DM whose parents are more knowledgeable about pump functions have optimal glycemic control as evidenced by A1C. These findings underscore the importance of ongoing pump training for both pediatric patients and their parents.
本研究旨在确定父母对连续皮下胰岛素输注（CSII）装置的了解是否会影响糖化血红蛋白（A1C）水平所衡量的血糖控制。
使用 CSII 的 1 型糖尿病（T1DM）儿童的父母完成了一份包含 14 个问题的问卷。问题 1-10 是基于知识的问题，要求父母从孩子的 CSII 设备中提取特定信息。问题 11-14 要求父母对自己的 CSII 知识进行自我评估。
22 名 T1DM 青少年的父母参与了这项研究。其中 10 名青少年的 A1C<8%，处于低 A1C 组，而另外 12 名青少年的 A1C≥8%，处于高 A1C 组。在 10 项表现调查中，低 A1C 组青少年的父母得分明显优于高 A1C 组的父母。大多数低 A1C 组儿童的父母表示，他们非常了解孩子的胰岛素泵，并且自从孩子开始使用胰岛素泵以来，他们的泵知识有所增加。
我们的研究结果表明，对泵功能了解更多的 T1DM 青少年的血糖控制更为理想，糖化血红蛋白（A1C）结果即为明证。这些发现强调了持续进行泵培训对儿科患者及其父母的重要性。
