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生活质量与技术:对糖尿病患儿及其家庭的影响。

Quality of life and technology: impact on children and families with diabetes.

机构信息

Clinical, Behavioral and Outcomes Research, Joslin Diabetes Center, One Joslin Place, Suite 350, Boston, MA 02215, USA.

出版信息

Curr Diab Rep. 2012 Dec;12(6):711-20. doi: 10.1007/s11892-012-0313-4.

Abstract

Ensuring quality of life (QOL) while maintaining glycemic control within targets is an important challenge in type 1 and type 2 diabetes treatment. For children with diabetes, QOL includes enjoying meals, feeling safe in school, and perceiving positive, supportive relationships with parents, siblings, and friends. Yet many treatment-related and psychosocial barriers can interfere with a child's QOL and their ability to manage diabetes effectively. Diabetes management also imposes considerable lifestyle demands that are difficult and often frustrating for children to negotiate at a young age. Recent advances in diabetes medications and technologies have improved glycemic control in children with diabetes. Two widely used technologies are the insulin pump and continuous glucose monitoring (CGM) system. These technologies provide patients with more flexibility in their daily life and information about glucose fluctuations. Several studies report improvements in glycemic control in children with type 1 diabetes using the insulin pump or sensor-augmented pump therapy. Importantly, these technologies may impact QOL for children and families with diabetes, although they are rarely used or studied in the treatment of children with type 2 diabetes. Further, emerging closed loop and web- and phone-based technologies have great potential for supporting diabetes self-management and perhaps QOL. A deeper understanding and appreciation of the impact of diabetes technology on children's and parents' QOL is critical for both the medical and psychological care of diabetes. Thus, the purpose of this review is to discuss the impact of new diabetes technologies on QOL in children, adolescents and families with type 1 diabetes.

摘要

在 1 型和 2 型糖尿病治疗中,确保生活质量 (QOL) 并将血糖控制在目标范围内是一个重要的挑战。对于患有糖尿病的儿童,QOL 包括享受美食、在学校感到安全、并与父母、兄弟姐妹和朋友建立积极、支持的关系。然而,许多与治疗相关的和心理社会障碍会干扰儿童的 QOL 和他们有效管理糖尿病的能力。糖尿病管理还会带来相当大的生活方式需求,这些需求对于年幼的孩子来说很难应对,而且常常令人沮丧。最近在糖尿病药物和技术方面的进展提高了儿童糖尿病患者的血糖控制水平。两种广泛使用的技术是胰岛素泵和连续血糖监测 (CGM) 系统。这些技术为患者的日常生活提供了更大的灵活性,并提供了有关血糖波动的信息。多项研究报告称,使用胰岛素泵或传感器增强型泵治疗可改善 1 型糖尿病儿童的血糖控制。重要的是,这些技术可能会影响患有糖尿病的儿童和家庭的 QOL,尽管它们在治疗 2 型糖尿病儿童中很少使用或研究。此外,新兴的闭环和基于网络和电话的技术在支持糖尿病自我管理和改善 QOL 方面具有很大的潜力。更深入地了解糖尿病技术对儿童和父母 QOL 的影响对于糖尿病的医疗和心理护理都至关重要。因此,本综述的目的是讨论新的糖尿病技术对 1 型糖尿病儿童、青少年和家庭 QOL 的影响。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0c91/3521524/8b0c6b530f04/nihms-420644-f0001.jpg

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