Sweetland J, Riazi A, Cano S J, Playford E D
Institute of Neurology, University College London, London, UK.
Mult Scler. 2007 Nov;13(9):1183-9. doi: 10.1177/1352458507078414. Epub 2007 Jul 10.
The NSF for Long-term Neurological Conditions highlights the need for vocational rehabilitation services. Although the barriers to work for people with MS (pwMS) have been clearly identified, there has been little research that identifies the type of support required.
To identify what pwMS require from a vocational rehabilitation service in terms of content and service delivery.
Four focus groups of pwMS, currently in employment, were convened. These were audio-taped and content analysed using a constant comparison method.
People with MS identified two key needs; managing performance and managing expectations. Performance difficulties could be managed either by treating symptoms, by changing the environment, or by altering the demands of the job. PwMS highlighted the need for counselling to help them, and advocacy to help their employers have appropriate expectations.
PwMS need support in the workplace in two distinct ways. First, by managing the interaction between the impairments caused by MS, the physical environment, and the demands imposed by the work. Second, by providing expert knowledge about the employment environment and the needs of employers, an awareness of the relevant legislation and counselling in supporting people to adapt, adjust and resolve complex issues.
长期神经疾病国家战略框架强调了职业康复服务的必要性。尽管多发性硬化症患者（pwMS）的工作障碍已被明确识别，但很少有研究确定所需的支持类型。
确定pwMS在职业康复服务的内容和服务提供方面有哪些需求。
召集了四个在职pwMS焦点小组。对这些小组进行了录音，并采用持续比较法进行内容分析。
pwMS确定了两个关键需求；管理工作表现和管理期望。工作表现困难可以通过治疗症状、改变环境或改变工作要求来解决。pwMS强调需要咨询以帮助他们，以及需要宣传以帮助他们的雇主有适当的期望。
pwMS在工作场所需要两种不同方式的支持。第一，通过管理多发性硬化症引起的损伤、物理环境和工作要求之间的相互作用。第二，通过提供有关就业环境和雇主需求的专业知识、对相关立法的认识以及支持人们适应、调整和解决复杂问题的咨询。
