Department of Health Sciences, University of Genoa, 16132 Genoa, Italy.
Occupational Medicine Unit, IRCCS Ospedale Policlinico San Martino, 16132 Genoa, Italy.
Int J Environ Res Public Health. 2022 Aug 2;19(15):9452. doi: 10.3390/ijerph19159452.
The objective of the study was to describe and analyze the stigma, discrimination and the disclosure of the diagnosis of Multiple Sclerosis (MS) in the workplace. The protocol was registered in PROSPERO (CRD42022320437). We systematically searched four scientific databases with key search terms. We included any original peer-reviewed articles reporting the stigma or discrimination experienced at work due to MS or the disclosure of the diagnosis of MS in the workplace. No time limits were set for the search. An appraisal of the individual study quality was performed with the JBI critical appraisal checklist. Overall, 26 studies were deemed to fulfil all the eligibility criteria. The total number of participants in this review was 9571. The prevalence of people with MS who experience some degree of stigma in the workplace can be as high as 79.2%. Those who report greater feelings of discrimination are more likely to be unemployed. The prevalence of employers' and co-workers' awareness of the diagnosis varies from 31.7 to 90.2%. The main reason for non-disclosure is the fear of being discriminated against. The psychosocial work environment needs to be taken into consideration as part of public and individual policies to promote the health of patients with MS.
本研究旨在描述和分析多发性硬化症(MS)患者在工作场所中面临的污名、歧视和诊断披露问题。该研究方案已在 PROSPERO(CRD42022320437)中注册。我们系统地检索了四个科学数据库,使用了关键搜索词。我们纳入了任何报告因 MS 而在工作场所中遭受污名或歧视,或在工作场所中披露 MS 诊断的原始同行评审文章。搜索未设置时间限制。使用 JBI 批判性评估清单对个体研究质量进行评估。总体而言,有 26 项研究符合所有纳入标准。本综述的参与者总数为 9571 人。在工作场所中经历某种程度污名的 MS 患者的比例可能高达 79.2%。那些报告更多歧视感的人更有可能失业。雇主和同事对诊断的知晓率从 31.7%到 90.2%不等。不披露的主要原因是担心受到歧视。需要考虑到心理社会工作环境,作为促进 MS 患者健康的公共和个体政策的一部分。