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癌症患者权益倡导:治疗进展的新机遇。

Cancer patient advocacy: new opportunities for treatment advances.

作者信息

Quale Diane Zipursky, Droller Michael J

机构信息

Bladder Cancer Advocacy Network, Bethesda, MD 20814, USA.

出版信息

Urol Oncol. 2007 Jul-Aug;25(4):351-2. doi: 10.1016/j.urolonc.2007.05.001.

Abstract

Patient advocacy organizations play a critical role in increasing public awareness of a specific cancer and in demanding improvement in approaches to treatment. These organizations also can increase participation in clinical trials and help raise funds for research. But not all cancer patients are represented by advocacy organizations. Until the founding of the Bladder Cancer Advocacy Network in 2005, there was no patient advocacy group for bladder cancer despite the prevalence of the disease. Working with health care professionals, this new advocacy organization can facilitate further advances in research and treatment, leading possibly to a cure for bladder cancer.

摘要

患者权益倡导组织在提高公众对特定癌症的认识以及要求改进治疗方法方面发挥着关键作用。这些组织还可以增加参与临床试验的人数,并有助于筹集研究资金。但并非所有癌症患者都有权益倡导组织代表。在2005年膀胱癌权益倡导网络成立之前,尽管膀胱癌发病率很高,但一直没有膀胱癌患者权益倡导组织。这个新的权益倡导组织与医疗保健专业人员合作,可以推动研究和治疗取得进一步进展,有可能实现膀胱癌的治愈。

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