Schear Rebekkah M, Manasco Leigh, McGoldrick Devon, Kajana Kiti, Rosenthal Lauren, McMikel Ann, Lins Nancy
Rebekkah M. Schear and Devon McGoldrick, LIVESTRONG Foundation, Austin, TX; Leigh Manasco, LIVESTRONG Foundation, Memphis, TN; Kiti Kajana, Open Society Foundations, New York, NY; Lauren Rosenthal and Ann McMikel, American Cancer Society; and Nancy Lins, N.E. Lins & Associates, Atlanta, GA.
J Glob Oncol. 2015 Oct 28;1(2):83-91. doi: 10.1200/JGO.2015.000398. eCollection 2015 Dec.
With the rate of cancer and other noncommunicable diseases (NCDs) growing globally, cancer prevention and control efforts are critical internationally. Moreover, since the 2011 United Nations High-Level Meeting on NCDs, the international health and development community has shifted its awareness to include NCDs as a global health priority, especially in developing countries where mortality rates are disproportionately high. Simultaneously, with the dissemination of the World Cancer Declaration and the evolution of cancer control policies, the international cancer community has recognized the value of engaging patients in reducing the global cancer burden. Cancer advocacy programs that involve patients, survivors, and nongovernmental organizations (NGOs) have increasing opportunities for global impact.
We developed a framework over 4 years through implementation of two pilot projects. We created a series of trainings and tools to build the capacity of local NGOs and patients to plan and implement a forum for patients with cancer and to create and disseminate a national call to action. The framework was piloted in South Africa from 2009 to 2011 and Japan from 2012 to 2014, and results were measured through postproject surveys completed by members of the collaborative working group and interviews with the in-country partner.
The framework is globally relevant and could be adapted and implemented in low- and middle-income countries to amplify patient voices in the policymaking process, increase grassroots mobilization, and improve health systems and infrastructure through addressing patient needs.
With the dominant paradigm of global health in developing countries-which has previously focused on HIV/AIDS, maternal and child health, tuberculosis, and malaria-shifting to adapt to the burgeoning NCD burden, effective patient-centered advocacy frameworks are critical to the success of NCD control.
随着全球癌症及其他非传染性疾病（NCDs）发病率的上升，癌症预防与控制工作在国际上至关重要。此外，自2011年联合国非传染性疾病问题高级别会议以来，国际卫生与发展界已将意识转变为将非传染性疾病列为全球卫生优先事项，尤其是在死亡率过高的发展中国家。同时，随着《世界癌症宣言》的传播以及癌症控制政策的演变，国际癌症界已认识到让患者参与减轻全球癌症负担的价值。涉及患者、幸存者和非政府组织（NGOs）的癌症宣传项目产生全球影响的机会越来越多。
我们通过实施两个试点项目，历时4年制定了一个框架。我们创建了一系列培训和工具，以增强当地非政府组织和患者规划和实施癌症患者论坛的能力，并创建和传播全国行动呼吁。该框架于2009年至2011年在南非进行试点，2012年至2014年在日本进行试点，并通过合作工作组成员完成的项目后调查以及与国内合作伙伴的访谈来衡量结果。
该框架具有全球相关性，可在低收入和中等收入国家进行调整和实施，以在决策过程中放大患者声音，增强基层动员，并通过满足患者需求改善卫生系统和基础设施。
随着发展中国家全球卫生的主导范式——以前主要关注艾滋病毒/艾滋病、母婴健康、结核病和疟疾——转向适应迅速增长的非传染性疾病负担，有效的以患者为中心的宣传框架对于非传染性疾病控制的成功至关重要。
