Rini Annie, Loriz Lillia
Division of Endocrinology, Nemours Children's Clinic, Jacksonville, FL 32207, USA.
J Pediatr Nurs. 2007 Aug;22(4):272-82. doi: 10.1016/j.pedn.2006.08.008.
Even when prognosis is poor and death appears imminent, care of the dying child typically focuses on achieving cure. Parents are often ill-prepared to cope with the grief they experience as their child is dying. Anticipatory mourning allows time to begin grief work prior to the death of a loved one. An exploratory design was used to answer questions in focused semistructured interviews to determine the presence and the role of anticipatory mourning, and to describe the themes expressed by parents. Parents' descriptions of their experiences surrounding the death of their child reveal an environment and a health care team that are often ill-prepared to deal with the impending death of a child. Also described are instances that reflect a compassionate process that positively affects the experience while facilitating appropriate grief work. Offered are recommendations for health care professionals that may assist parents in coping with the death of their child.
即使预后很差且死亡似乎即将来临，对濒死儿童的护理通常仍侧重于实现治愈。当孩子濒临死亡时，父母往往没有做好应对自身悲痛的准备。预期性哀伤让人们有时间在亲人去世前就开始悲伤处理工作。本研究采用探索性设计，通过聚焦的半结构化访谈回答问题，以确定预期性哀伤的存在及其作用，并描述父母表达的主题。父母对孩子死亡周围经历的描述揭示了一种环境以及一个往往没有做好应对儿童即将死亡准备的医疗团队。文中还描述了一些事例，这些事例反映了一个富有同情心的过程，该过程在促进适当的悲伤处理工作的同时，对这种经历产生了积极影响。本文为医疗保健专业人员提供了一些建议，这些建议可能有助于父母应对孩子的死亡。
