Jones James B, Snyder Claire F, Wu Albert W
Department of Health Policy and Management, Bloomberg School of Public Health, The Johns Hopkins University, 624 North Broadway, 6th Floor, Baltimore, MD 21205-1901, USA.
Qual Life Res. 2007 Oct;16(8):1407-17. doi: 10.1007/s11136-007-9235-z. Epub 2007 Aug 1.
Although there is a growing interest in using patient-reported outcomes (PRO) to monitor disease progression and/or therapeutic response, to improve care, and to screen for physical or psychosocial problems in routine clinical practice, PRO instruments can be difficult to administer, score, and interpret in this setting. Internet-based approaches to PRO collection may help overcome these obstacles. This paper discusses the rationale for using the Internet for routine PRO collection, summarizes relevant literature and ongoing projects, and raises several key design and development issues that should guide further efforts in this area.
A small number of Internet-based PRO collection applications have been or are currently being developed. The major characteristics of several of these projects are reviewed and summarized. Successful Internet-based PRO collection applications must address patient and clinician-specific needs related to workflow and to the way in which results are presented. A growing number of instruments have been adapted for and evaluated in a web-based format.
Collecting PROs via the Internet has the potential to overcome many of the challenges associated with efforts to routinely use PROs in the clinical encounter.
尽管在日常临床实践中，利用患者报告结局（PRO）来监测疾病进展和/或治疗反应、改善护理以及筛查身体或心理社会问题的兴趣日益浓厚，但在这种情况下，PRO工具可能难以实施、评分和解释。基于互联网的PRO收集方法可能有助于克服这些障碍。本文讨论了在日常PRO收集中使用互联网的基本原理，总结了相关文献和正在进行的项目，并提出了几个关键的设计和开发问题，这些问题应指导该领域的进一步工作。
已经或正在开发少数基于互联网的PRO收集应用程序。对其中几个项目的主要特点进行了回顾和总结。成功的基于互联网的PRO收集应用程序必须满足患者和临床医生在工作流程以及结果呈现方式方面的特定需求。越来越多的工具已被改编为基于网络的格式并进行了评估。
通过互联网收集PRO有潜力克服在临床诊疗中常规使用PRO所面临的许多挑战。
